Tablets for 5-10 years after Radiotherapy

Morning everyone on this wet wet morning here,

im off to get my dressings changed today,has it really been 7 days since they took that C out of my right boob...

live been researching the tablets as have been told I will have to take Letrazole,but found that the one with the least side effects is Femara? Any advice or thoughts on this please ?

Jackie xxx

  • Hi Mary,

    Why didn’t they do your lymph nodes at the same time? I was put to sleep,they did the lymph nodes first and they went straight to the lab while they got on with the lumpectomy and results were back before operation was finished so if they weren’t clear they would have carried on removing them.

    He He,I still have some blue on my boob..... my hubby was really concerned after my op as to how blue my face was but I couldn’t see it,he called me Mama Smurf lol 

    Im not looking forward to Radiotherapy or the tablets,and really scared of the radiotherapy,I’ll be a panicky mess with that!! 

    My Consultant did warn me that the radiotherapy is very very tiring but I’m sure everyone is different...Our hospital is 30-40 minutes away so going to be long tiring days for us both sadly.

    Love me xxxx.

     

  • Morning Jackie when they did the initial biopsy under local anaesthetic they thought I would just need a lumpectomy but when they got the results back it showed invasive cells so had to then have the lymph nodes done. It’s good that you had yours done all at the same time. I have been quite tired having two GA ops in 5 weeks. Never mind, get results this week and move forward then.

    Have a good day.

    Love Mary xx

  • Morning Mary,

    It’s all a not knowing waiting game isn’t it!!!

    My initial biopsy came back with invasive cells that’s why they did the lymph nodes at the same time as the lumpectomy which thankfully they are clear.... so everything crossed yours are too

    I think had it spread they would have taken them all out but then what do I know with this bloody rubbish.... 

    Enjoy your day as best you can,here if you want a chat.

    love me xxxx

  • Hi Jackie - you never know she might let you go on holiday but if not its something to look forward to as a treat after finishing radiotherapy.:)

    fingers crossed x

  • Hi Maggie,

    i don’t see the Oncologist until Monday 16th and due to go away 5th October so don’t think there’s enough time before as I don’t know how quickly they organise it alll? 

    So I guess it’s a waiting game now,holiday was booked before this all came out....

    It’s only for a week so not sure if it would make a difference a week when I’ve had to wait over 3 weeks to see her as only works 2 days a week.

    love Jackie 

  • Hi Jackie

    after seeing my oncologist for the first time, radiotherapy scheduled to start 6 weeks later. It got postponed a couple of times.  Dont think there's a set time for when rads start - I guess you'll have to wait 'till Monday to find out. x

  • Hi Maggie,

    It doesn’t seem to be urgent does it once you’ve had the operation?but did you start tablets while you were waiting? 

    Love Jackie xxx

  • Hi Maggie 

     

    Sorry that was a quick post but a friend had called in!! It’s a slow process isn’t it after the operation?I had mine on 7th August and although seen the Consultant,my first appointment with Oncologist is 16th September so been quite a wait after before my operation everything was so quick and since operation it’s been so slow.... just concerned that I don’t want this coming back..... 

    Love Jackie xxx

  • Hi Jackie

    Yes I started the meds before Rads but only because my surgeon gave them to me. The oncolgist checked that my wounds were healed and told me they planned 4 weeks of raiotherapy and that I would get a timetable through the post. About a week later I got the letter with a date for my CT scan simulator and then the rads timetable. I understand your concern - I was too, in fact I think I posted about this at the time on here. I was told by the oncologist that they try and start rads max 3 months post surgery, however mine was 6 months post 1st surgery, 2 months post 2nd surgery. No one seemed in a hurray or bothered by the lenght of time.x

  • Morning Maggie,

    Thank you for your reassurance over the Radiotherapy,I guess maybe I’ll get some idea next Monday and see what she says about the tablets.I am concerned over them with having MS but hopefully she will be understanding and give me ones with the least side effects especially with joint pains

    love Jackie xxx