Hi Maggie,

Seeing Oncologist not until 16th as she only works 2 days a week!! That’s interesting to know and I’ll have to ask her given ive got Multiple Sclerosis,I need one with the least joint pains as get enough especially in my legs..... 

i hsvent hesrd anything about Radiotherapy so not sure who books me in for this? I was hoping Oncologist will but I’ve a weeks holiday booked on 5th October and booked before this bloody cancer made it’s self known so hoping I can still go but obviously I want to be sure that it doesn’t affect this cancer that’s gone chance to start coming back...Love Jackie xxx

Hi Jackie 

Sorry I thought you had seen the Oncologist. The oncologist will organise your radiotherapy as she will have to look at how you are healing and that its healed enough to start raiotherapy., its frustrating that we are not given care plans that have all of this information, wrong to keep patients in the dark. 

I'm sure she'll take your MS into account. A holiday sounds just what the doctor ordered:)

xx

Hi Maggie,

lim hoping she will say a holiday will be good but I guess that would delay my Radiotherapy unless you can do 10 sessions have 5 off then back for the last 5 but thinking I need to have it all in one go to insure no floaters left of this crap.... 

You are so right no plans in place just wait from appointment to appointment to find out what’s next.... which doesn’t help you get your mind into a positive place!!

Love Jackie xxx

Hi Jackie when I went to an information meeting run by the Macmillan nurses at my hospital they said there that the three weeks has to be continuous and not to miss any unless you’re sick etc. 

I go back for the results of my lymph node biopsies this week. Had lumpectomy but they found invasive cells in  tissue so had to go back again for another op. Seem to have spent all summer waiting for results!

hopefully will then get my plan for radiotherapy and be able to move forward a bit instead of being in limbo

Hope all goes well for you

Love Mary xx

IHi Mary,

I thought that would be the case,sessions to run everyday apart from the weekends!!

Im sorry you had to go back again but as long as they got all the ***...

Yes know the feeling all plans on hold except I’d booked my week away before this rubbish decided to rear it’s ugly head..... grrrrr 

I will be thinking of you for great positive results for you.

love and hugs Jackie xxx

Thanks Jackie

We have a weeks holiday booked on 21st September so expect radiotherapy should start some time in October.  Hope you manage to get away.

Will let you know what happens on Thursday 

Bye for now.

Love Mary xx

Hi Mary,

i see the Oncologist on 16th,so I’m hoping she will talk about the Radiotherapy then? Plus what dreaded tablets I’ll be on.... have you any idea of what you’ll be put on? 

Im hoping I can go away 5th and then start Radiotherapy on 14th when I get back but don’t want to delay if she thinks it may have a chance of coming back.....

Good luck for Thursday,I’ll be thinking of you....

love Jackie xx

Hi Jackie I haven’t been given any details yet. They wanted to see if it has got into the lymph glands first. Tablets were mentioned to be taken for 5 years, bit concerned about side effects I must admit.

Hopefully you can go away for your holiday. I think there’s quite a lot of preparation to be done before radiotherapy starts so there’s all that to go through too.

Love Mary xx

Hi Jackie wish I could have had the lymph nodes done at the same time as the lumpectomy but never mind 15 sessions of radiotherapy were mentioned to me before over 3 weeks (5 days a week)

Never did get round to having a tattoo so here’s my chance Already am a very fetching shade of turquoise on the right boob......

You will be concerned about side effects due to your MS and I am sure you will get the correct advice regarding that. Not looking forward to hot flushes etc, having nicely got rid of all that stuff!

Hopefully the radiotherapy won’t be too taxing, am hoping I can drive myself there for some of it until the tiredness takes over. We have quite a journey to get to the hospital, it’s over an hour’s drive away.

Love Mary xx