Paclitaxel and hair loss

Is anybody on low dose paclitaxel and kept their hair without using a cold cap, I know loosing your hair is a small price to pay for keeping cancer at bay, my family keep telling me, it will grow back and I know that, but it does not help how i feel and it is really upsetting me, i dont know why our of everthing i have been and have to go tbrough yet this is distessing me the most, is anybody else feeling like this or am I being silly

  • Hi Krissy, when I was first dx with bc 10 years ago I was devastated about losing my hair, to me that was nearly as bad as having cancer, I know that sounds really stupid but that's how I felt at the time. 2 years ago I was dx with secondary bc with mets to the bones, liver and omental layer. My last chemo they said my hair would just thin out but it was coming out in chunks, so I got my husband to shave it off. It didn't bother me at all this time. I wear head scarves and tie them in different ways and have all different colours. They look lovely and lots of people .say I really suit them. Bonus is you don't have to wash your hair and do it all lol. No your not being silly, you'll find there are lots of people who feel the same. I start on paclitaxel on the 23rd. I'm more worried about losing my eyelashes now, they've already gone really short. If you go on utube you will get lots of videos how to tie head scarves different ways. Hope all goes well with your treatment. Hope this has helped a bit. If you want to know anything, just ask. Take care Hun. Lots of love Shelly.xxx

  • Hi Shelly, you have been through so much and I am wittering about loosing my hair which seems so trivial when you look at everything and it surprised me how I felt, I suppose it's your self esteem. I have until Wednesday to decide if I want to use the cold cap and I still don't know, I have my first herceptin injection Wednesday and have to stay on the unit for 6 hours in case if reactions then Thursday I have my first chemo, what makes it worse is the oncologist has said that I will not get much benefit from the chemo but I need the herceptin as I have HER2 positive breast cancer and that is where the most benefit is but I can't have that without the chemo. I have only just realised that my eyebrows and lashes will go to but have been told you can get magnetic lashed, it's a magnetic eyeliner you put on and the lashes stick to that, might have to have a go at that. I am going to have a look at some wigs and scarves on Tuesday, thought I had better be prepared before it all falls out, where do you get your scarfs from, the ones I have seen are a bit dull, if I have got to do this I want colour and tails. Good luck on 23rd and let me know how you get on, you take care and look after yourself, love Krissy x x

  • Hi Krissy. Dont worry aboutthinking its trivial everyone is entitled to be anxious about there own things. I was exactly the same. I tried the cold cap when i was first dx but i couldnt handle it . Its not guaranteed to work. Did you know that. Didnt know you could get magnetic eyelashes they sound good. Will have a look at them. I get my scarves from all over. Newlook, peacocks, tesco they all have some lovely ones. Get the long ones then when you tie it tie it in a knot and pull one side out before you pull it tight. It looks lovely then you can leave the long bits hanging down front or back. 

    Thank you for your well wishes you too. Hope everything goes well you let me know how yours goes too. Best wishes to you and good luck with everything .

    Lots of love Shellyxxxx

  • You are definitely not being silly, I used the cold cap with the EC for one session and when about 60% of my hair fell out I had it shaved. I am now on the Paclitaxel weekly and have had 2 sessions and my hair seems to be growing back, with no cold cap. I have been told by the oncologist nurses as the weekly taxel is much weaker it is less unkind to the hair. So fingers crossed it should keep growing! I am devastated about losing my hair< I am just pleased it is coming back I have 10 sessions to go!

     Will keep you posted, let me know how yours is doing? Good luck!

  • Hello... I'm on low does paclitaxel and 3 weekly herceptin 

    The morning of my 3 chemo session my hair started to fall out!

    I had already had a decent short pixie

    cut to prepare myself . It was still a shock if I'm honest and as a woman hair is a massive part of our life!

    so you are perfectly normal in feeling distressed! My son got the clippers out and I've now got a buzz cut 

    You can buy some seriously cool/ trendy beanie, scarfs , hats etc from

    amazon 

    Our BC unit also has a Macmillan shop so I got a couple of bandanna from them too(£3 each... and loads to choose from) 

    I did struggle and if I'm honest still do about how I look BUT  nothing lasts for ever.

    Remember that !

    You will be absolutely fine and it will grow back 

    take care X