Hello Denise1977, 

I'm sorry to hear that you're still waiting for treatment to start. It sounds as if the team have been trying to pinpoint exactly what's going on and where the cancer has started so that they can offer the most appropriate treatment. Not always an easy situation for you as the patient to have been waiting so long. 

I know from your previous posts that trial immotherapy was previously considered an option but then the consultant felt it wasn't. It sounds as if they've offered this to you again? Either way you don't have to accept the offer to take part in a trial if you feel that you'd rather not. It's your choice and shouldn't impact on the other treatment options that are available to you. 

I'm wondering if before you make a decision you'd find it helpfu lto talk things through with one of our team of nurses. You can call them freephone on 0808 800 4040 and they're available Monday to Friday 9am to 5pm. 

Best wishes, 
Jenn
Cancer Chat moderator

Hi Jenny thank you for your reply.My team I am sorry but it's pretty bad.Keep changing their minds every minute and I am the only who is suffering.This trial when I read the paper my hair stood up on my back of the neck,this trial is new and just tried it on mice and the side effects are like from horror story.

Meantime I got worse for 3 days I could lift my leg,I am only 42 and don't want to end up on wheelchair,now I can't sleep because of the rib pain and nobody cares.

They just keep me  waiting,I don't trust this oncology team anymore and I think this trial would make me worse if it's no proof It can help I am not doing it.

After I threatened with legal action finally got phone call to have blood tests done and CT before chemo.so hopefully I can start "This year".

I find it cruel to make people get waiting until get worse,and it's disgraceful that just because I am stage 4 I have to book cemetery and they written me off.

Anyway I will go ahead with only chemo and if they refuse later more treatment which I can expect they will say later I will go private because I am not willing to book my funeral anytime soon.But when I see my doctors they just can't be bothered.

Hi Denise sorry thear dragging thear feet, but sometimes they kneed to be sure of your treatment, needs remember any mistakes make it worse for you, from telling me I had cancer to starting treatment was over FOUR months i had scans and biopsy in mean time but it was still a long wait that was 2016 February, best wishes.

Billy 

Thank you Billy for your answer.But there is a legal time limit and you have the right to start the treatment within 2 months.Biopsies or scans doesn't matter they should speed it up then..I also refused the immunotherapy because they wanted me to do more tests that's mean more waiting.

They already made a mistake so for me I just want any chemotherapy which would shrink the tumour and could have the surgery but by waiting it can spread to another part of body and then my plan of surgery will go down to the pot.Plus the tumours can grow bigger and bigger and now I can't do half of the things I could do 3 weeks ago.Since I have been diagnosed was just wasting time to go see the doctors talking about nothing.i am nearly choking on my own phlegm,can't sleep because pain in my ribs now even the codein doesn't help but the my doctors having sweet dreams in their beds.

I don't think it's fair why I have to suffer?