Paclitaxel

anyone been on this chemo paclitaxel, just wondered about side effects. Due to start it, just waiting for letter in the post.

  • Thanks for asking, about same, as I said marj is a directory of information she's a good girl arnt you marj, hope you get drain going soon, love.... Billy 

  • Thanks Billy me too.  Hope you both feel better soon.

    Marj definitely is full of useful information, good to have someone like that to talk to, nice lady. Speak soon Billy.

    love Shelly.xxx

  • Hi shelly did marj tell you she can drop off any time so might be a while before she replies, or half of a long letter, you never know, best wishes. Billy (^_-)

  • Hi Billy, no I didn't know that, thanks anyway. 

    Take care, lots of love Shelly.xxx

  • Hi shelly I think there's a conspiracy going on got appointment with Dr i didn't ask for, today appointment for a scan no idea why, but there checking where my C is, most curious, i had scan last year for same thing, unless it's spreading,, got to find someone to look after Brenda while I'm out,, it never ends hope you enjoyed being drained. Love... Billy

    P.s sorry just realised wrong string, 

  • Hi Billy, how come you don't get regular scans? I get them every 3 months to see if cancer has spread. They might have some new treatment for you to try. Sorry for asking, but what cancer did you say you had? I have chemo brain, my memory is really bad. Hope all goes well at your appointment.

    love  Shelly.xxx

  • Hi shelly I've prostate, lymph nodes, spine, ribs, pelvis, i had scan's when first found, one last year but I have 3 monthly blood test, i was supposed to go to specialist on, 19th but just got letter been put back 3 months, just hope C doesn't rise quickly or I'm in trouble,, you relax let Peter do the work,, love... Billy 

  • Aw bless you.  Hope it doesn't. Hate this horrible disease. It's about time they found a cure.

    everything crossed for you. 

    I am just chilling, laid on the sofa, don't intend doing anything.

    you take it easy. 

    Lots of love, hugs and kisses

    Shelly.xxx

  • Careful you'll get Peter jealous saying that", hugs and kisses "if I get a black eye I know hue to blame, XXX till you feel better,... Billy 

  • Hi Shelly, I am glad you have not been on anything yet that the side affects are too bad. I have been talking to my Macmillan nurse at the hospital today. Only on the phone. The subject of dicitaxel came up. Just in a basic conversation. She was saying how well I had responded to it, after only having hat the two. Apparently they are reviewing that for women. What they are finding. Believe you me it’s one hell of a Nast nasty drug. They think males can tolerate a few more doses than women. They are under no illusions how closely they have to monitor you because of its toxicity. She did say that with the Paclitaxcel is going to be the drug of choice for females.  Personally they maybe correct. However I did say now this is just me I am talking about here. If I was to coincident either or treatment again I would personally no matter how bad it made me. I would definitely want the doclitaxel. She seemed a bit surprised by me having said that. It has I explained ok almost killed me, either with or without I am going to die anyhow. Having had such a good response to Docitaxel because I know it works was why I personally would prefer it. If it did end up killing me. At least I tried again. I also did find out I was on a 20mg higher dose than normal. That was because when I started it I was on antibiotics Erythromycin. I can’t have penicillin due to Anaphylactic shock I had once from it. So apparently the Erythromycin can have a affect on the dicitaxel so because of that possibility I was put on a 120mg dose instead of a 100mg dose. So that’s my own personal feelings about it. Something I have been meaning to say to everyone yet I keep forgetting. No matter what I have anymore especially with cancer flowing through my blood. So I am pretty much in pain a lot because of that. Also apologies but not been good and the last few days my daughter had another baby so been helping out with my granddaughter. I more or less dose off after I have sorted her and she eventually goes home which has been a lot later than normal. My daughter spent almost 30 hours in labour ended up have a C section so she’s still in the hospital. Driving my absolutely nuts. Her emotions are all over the place. I was busy feeding my granddaughter I got text after text after text, her expecting me to reply straight the way, I just respond. Next minute I am sooty she says crying I don’t know why I feel like this. I am so emotional and keep crying on and off. Next minute she’s like a bloody evil witch ‍♀️ lol I tried to tell her every child you have is not going to be the same as the others. Anyhow I will sign off for now, this is the problem dosing easily I wake at weird hours lol, Billy will tell you that. Also how I can write a book lol xxxxx love Marj xx