Paclitaxel

anyone been on this chemo paclitaxel, just wondered about side effects. Due to start it, just waiting for letter in the post.

  • Hi Billy, how you today, well I hope. I don't think I've been on docetaxel I can't remember the other chemo I've been apart from capcitabine and eribulin. I'll see how this one goes, eventually when it stops working I'm going to push them to find me something else, even though she said I was out of options. Just come on here had family visiting today which was lovely.i just can't wait to get stomach sorted out. It's so bloated I look pregnant. It's ascites and it's really uncomfortable and painful. Waiting for date to get a ultrasound scan and drain the fluid off. Anyway let me know how your feeling Billy, best wishes.

    Love Shelly.xxx

  • Hi Marj, thank you for replying. I don't think I've had it, as I said to Billy can't remember some of the chemo I've been on. I'm going to see how this one goes first . When it stops working will push for something else, as they've told me no more options. Which I'm not accepting as there are 100's of different chemotherapy, so there must be something for me. Thank you and good luck hope everything goes well for you too.

    love Shelly.xx

  • Hi shelly doing OK apart from to hot took Mrs to hair dresser this morning then took Bella a long walk I always take her loose i know it's against law now, but she loves to be loose, she watches traffic and keeps beside me on path,, didn't do my legs much good though,,,, there not rushing around are they if to much fluid could cause other problems, and I think you've got enough,, love.... Billy 

  • Hi Billy, haven't you got a fan, Peter got mine out the loft last week, had it about 10 years only used it once. I was over the moon with it when it was red hot, made such a difference. We always let our dog loose but he's good as well. No there not rushing, been telling them about this for ages and just been ignored. I thought she would of rushed it through for me. I think I will get in touch with Macmillan nurses on Monday, they are really helpful, sort things out straight away. They may be able to get me seen to quicker. Hope your legs ease off. Take care Billy.

    love Shelly.xxx

  • Hi always take it easy have no choice I can't even run, if I try I fall over something about balance,, legs are rumatics in knees I have inj yearly, I've noticed when one thing goes wrong, others arnt far behind,. Best wishes, and thank husband for not beating me up,... Billy 

  • Aw bless you, I can imagine that being really painful. That's usually the case, if it's not one thing it's another. Ha ha I will tell him lol, that made me giggle. Take it easy then, speak soon.

    love Shelly.xxx

  • Hi Shelly.  I personally don’t think you have had Docitaxal, only reason I don’t think it. Is Palixital is part of the same family. With two fundamental differences. First came the palixital, it comes from a American Yew tree. Which caused a bit of a problem. Because of how much was needed that it would destroy all the tress. Anyhow, with biochemical research’s they then started on trying to make it synthetically. I know I know. Billy will be saying something like I told you she talks a lot. Some of its crap too. No I actually have and still do one hell of a lot of research about so much stuff. I once put my trust in doctors who I thought knew better than I did. I was given a injection of diazepam without being asked following the death of my first husband. I had never had anything like that before in my life. They gave me 120ml dose. Which knocked me for 6, he was killed in a car accident and because I didn’t go straight into shock the doctors where called and bang not one bloody person consulted me. They gave my sister a bottle of them as well for her to give them me every so many hours. Anyhow because I had never had it. I don’t know how I ever made it to the hospital to see him. I know they didn’t want me to go, they tried to get one of my brothers to stop me. After this injection I was floating in the air, at the same time struggling to stand stay awake, such weird things where happening to me. When my sister was giving me these tables that I never questioned what she was giving me. That was in the 80s late 80s it was benzodiazepines, the latest none addictive wonder drug huh as if . Each time I tried to ask them to stop giving them to me I got told I wasn’t ready that they just continue to give me more and other tables from the same family, 130ng diazepam 120 tamazapam 169 Ativan, thrisadine, 270 mg lefepramine.  All bloody benzodiazepines. I was on them so king it was unreal. It turned out benzodiazepines was one of the most addictive drug ever oh by the way those doses was per day. So now because of what they did I want to know exactly what I am given, what for, where it comes from, what are the side affectes. No one is ever going to give me anything like they did back then. Fortunately when I moved. I approached new doctors who where in total shock of how much of the stuff I was on. They where shocked that I could walk and almost live a relitivly normal life. Rather than giving me more at last they said I couldn’t just stop them but they helped me come off of them. So going back to what I was saying. There really is no need to tell you the chemical compounds. The biggest difference between the two. Is Docitaxal is stronger than Paclitixal. Also it has a higher mibirdity affect.  I know it almost killed me, can’t say who else. It’s up to them to say. However it does damn well work. No side affects are pretty similar.  Having said that, not everyone will get all the side affects and there’s not always everything that could be associated with the drugs. Certain side affects between each drug I noticed what your going on it says could Docitaxal it says definitely will, All I will say really every drug affects us all different. So because Blur had diarrhoea it doesn’t mean you will. I say get ready for the worst and what you don’t get is a bonus. I honestly believe if you have had Docitaxal you definitely would have known. Anyway I can tell you more if you wish if so let me know. But bearing in mind the time I am going to say nighy for tonight. I wish you all the luck in the world love Marj xxx

  • Hi shelly I told you marj can talk but she knows what she's talking about she could write a book about treatment and effects, probably has on the forum only joking marj, your a good girl helping others, hope you don't sleep to long, sweet dreams (do you dream) love.... Billy 

  • Hi Marj, bloody hell you've been through it haven't you. Can't beleive they put you on all them tablets, it's a wonder you could function at all.its shocking that doctors would even consider giving you them, they wanted striking off.  I'm sorry to hear about your loss, deepest sympathy to you.

    I definitely don't think I've been on Docitaxal. I'm dreading palixital, if that's how you spell it lol. To be honest I haven't had really bad side effects off any of my chemo, apart from fatigue and a bit of neuropathy.  You definitely seem to know.a lot about medicine, so if I have any questions I'll ask you, if that's ok? I understand I may not get all the symptoms or even any, just hope I don't. They told me after this one I have no more options, which is shocking, I think anyway. I will push for something else.

    nice speaking to you Marj, speak again soon.

    love Shelly.xxx

  • Hi Billy, do you think I sleep all day lol. I don't really, just had Mam, sister, nieces and nephew and sister in law over most of the day.

    your right about Marj, she know a lot of useful information, I will be asking her alsorts, she'll get sick of me lol. 

    No I don't dream, every once in a blue moon, then I usually can't remember them.

    anyway how's you and your wife doing, hope all well with you both. Best wishes

    love Shelly.xxx