Hi. I don't normally post on any sites so this is a rarity for me. In 2017 I was diagnosed with primary invasive lobular cancer stage 2. I had chemo, surgery and radiotherapy which finished in March 18. I recall the surgeon confidently telling me we are aiming for 'cure'. In March 19 I had a pain in my ribs my GP ordered an. Xray which id not show anything abnormal. In May 19 I presented to the emergency department with chest pain and following numerous tests and scans was diagnosed with stage 4 ILC with extensive spine mets and liver mets.
Having got over the initial shock and poor prognosis I started tthinking about signs I may have ignored. What comes to mind is that prior to my initial diagnosis in 2017 I had an extensive period when I constantly could smell smoke (phantosmia). It went away about a month before I was diagnosed. Strangely I had the same experience of phantosmia early in 2019 before this recent diagnosis. I know it sounds bizarre but I think I could smell the cancer growing inside me. If anyone has had similar experiences please let me know. It would be fascinating to do some research if there is a causal link.
I know there must be many people in a similar situation and in the time I have left I just want to help do anything so others don't have to go through the pain me and my family is.
Thank you
