Hi Joyelle. 

I'm sorry to hear about your Mum. I'm sure it's a difficult time for you all at the moment. 

We have some information on our website about neuroendocrine cancer. I've linked it for you here. 

I've had a look through the forum and I can see that we have a few members who are living with NETS. In particular [@kiki63]‍ and [@TriciaF]‍ . You can read more about Tricia's story here. [@andydorro1]‍  has been living with NETS for over 10 years so hopefully some of them will be along soon for a chat now I've mentioned them in this post.

If you'd like to speak to one of our team of nurses about Mum's diagnosis then do give them a call. they're available Monday to friday 9am to 5pm on 0808 800 4040. 

I hope this helps. 

Best wishes, 
Jenn
Cancer Chat moderator

Thanks very much for that. I’ll have a read of  Tricia's story now 

Hi there , 

i was taken into hospital in January and had part of my small intestine and half my large bowel removed. The tumour had grown around my bowel and nerves and blood vessels so couldn’t be fully removed. It has also spread to my liver , I am currently having four weekly injections as I have carcinoid syndrome . Stay positive - for the most part it’s a slower growing cancer and your mum may have had it for a number of years .i struggle to process food but hey -I’m alive... I’m back at work and I’m looking forward to my first grandchild next month. Stay strong xxx

Thanks for that. It’s always useful to hear someone else’s story. She has had a stomach CT so back tomorrow o see will she need more surgery before chemo .

Have you had chemo ?