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Ewing’s sarcoma treatment

nohmc97
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Hi I’m Niamh, i was diagnosed in October 2018 with a rare round cell soft tissue sarcoma, which is being treated as Ewing’s. So far I’ve had 6 sessions of VIDE and am currently in the middle of my next cycle VAI, then i move on to 7 cycles of VAC. Has anyone on this treatment plan or a similar one noticed any difference in when your blood counts drop? I’m stressing as on VIDE it was day 7-14 but I’ve read that it’s a lot later for the VAI/VAC due to the Actinomycin D. Also in terms of side effects did they hit later too as so far I’m feeling okay but scared it’s too good to be true! :( 

  • Hi Niamh, 

    Welcome to the forum and I'm glad to hear that so far you're managing well on this phase of your treatment. 

    I'ive had a look through the forum and we have a couple of members here who have experience of VIDE and VAI. [@MarkyN]‍ and [@Beingme45]‍  have both commented on this thread here recently so hopefully you will be able to make contact with and chat to them. 

    You can also find information on our website about VIDE, VAI and VAC. I've linked it for you here. 

    I hope that the good days continue to out number the more challenging ones! 

    Best wishes, 
    Jenn
    Cancer Chat moderator

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    Hi.

    i got Ewing’s Sarcoma. I got it in my left hand side pelvis and in my spine. It spread to my lungs too.

    i have 6 VIDE Chemotherapy and I have had 30 radiotherapy sessions on my spine and pelvis.

    my lungs are clear after the vide.

    im going on VAI to finish my treatment off. I should be starting it next Wednesday. 8 sessions of that.

    i have been told the side effects of VAI are barely anything to the VIDE and with having VIDE the body has maybe hardened to the chemotherapy so the side effects won’t be as bad

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