Hello everyone.

I joined this group years ago when I lost my partner from pancreatic cancer and having somewhere to go and just write down how I was feeling was a great help because his cancer was so clear cut, I was there for the journey which was extremly  quick. 

This however is very different and I'm at my wits end!!

So briefly, my understanding is that Dad was diagnosed with SMM about a year ago and was offered the Aquila Study, randomised to observation.  Of course, we don't know how long he had been in the smouldering stage, he found out after have a random blood test....luckily his doctor was on the ball.  What I do know from talking to the nurses on the Myeloma UK site is that he would have been high risk to enable him to be on the study.

So it appears he is now active and yesterday he was given all the medication for his Myeloma and I guess from this hospital appointment he is now at stage 3.  I spoke to him last night and both he and his lady friend were both a little overwhelmed and said they didn't understand everything they had been told at the hospital.

I am distraught, I live in the USA and just don't know what to do now.  What can I expect?

I go home in less than three weeks for three weeks.....should I extend my visit do you think.

Anything anyone can offer in the way of advice or comfort would be appreciated.