Peritoneal primary cancer

Hi, I would like to hear from anyone who as primary peritoneal cancer, I hardly see anything about it and although similar to ovarian cancer and is I think treated same and staged same it’s not the same.

i have had chemo surgery and chemo again, told I am palliative which as made me angry . 

I am now on tamoxifen 20 Mgs daily, been told I will see oncologist 3 monthly, so is that it ! I feel like crap today don’t know if it’s the drug or bowels or me . I feel knackered is this normal re I expect it if I was on chemo still. 

It would be good to hear from anyone else who had this awful illness and anyone taking this drug as I don’t know how I should feel on tamoxifen. 

I don’t know what is side effects or post surgery or cancer! 

Dont ask me to call gp or specialist nurse as so far very little support and I don’t like platitudes. 

Sorry that sounds mean but I’m a realist .

 

  • Hi there ..

    Well I can answer about tamoxifen .. no one told me about the side effects .. I went from a really strong, in control, happy lass to a blabbering wreck ... I was crying over everything ... untill I came on here and have heard and learned a lot about it .. so asked G P for a mild anti depressant and it had levelled out in a couple of days ... many have said their bones ache and no energy .. and depression ... 

    I've been on it 18 months now and have no problems, though I have pain in bones from arthritis and stenosis and scoliosis... so don't know if there's pain from either ... 

    Hope you get the other questions answered soon ...  chrissie x

  • Thankyou , I felt really mentally strong and I suppose I will keep on it as my side effects are not major.

    i will see how it goes . 

    thankyou for your reply. I wish you well x