Hi, I would like to hear from anyone who as primary peritoneal cancer, I hardly see anything about it and although similar to ovarian cancer and is I think treated same and staged same it’s not the same.
i have had chemo surgery and chemo again, told I am palliative which as made me angry .
I am now on tamoxifen 20 Mgs daily, been told I will see oncologist 3 monthly, so is that it ! I feel like crap today don’t know if it’s the drug or bowels or me . I feel knackered is this normal re I expect it if I was on chemo still.
It would be good to hear from anyone else who had this awful illness and anyone taking this drug as I don’t know how I should feel on tamoxifen.
I don’t know what is side effects or post surgery or cancer!
Dont ask me to call gp or specialist nurse as so far very little support and I don’t like platitudes.
Sorry that sounds mean but I’m a realist .
