Hello Roxymaisey, 

I just wanted to welcome you to the forum. I hope you won't mind but I have changed the title of your thread so that it is more easily identifiable by any of our members who may find themselves in a similar situation or facing the same difficult decision. 

I hope that others who have had this type of debulking surgery will be along and share their experience with you. In the meantime, should you want to talk about all this with one of our nurses, you are very welcome to give them a ring on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

Best wishes, 

Lucie, Cancer Chat Moderator

Hiya, sorry to hear what you have been through already. I have a rare form of cancer called pseudomyxoma peritonei. I had a debulking operation on 3rd December 2018, operation took 11 hours, removed my  stomach lining, appendix, spleen, gallbladder, womb and ovaries. It went really well and after five weeks in hospital I got home and am getting stronger every day. I hope it goes well for you. Xx

Hi Flora

Thank you so much for your reply it has helped ease my mind.

Ive been told that my cancer is terminal but going ahead with the op should give me some extra quality time to spend with my family.

Wishing you a good recovery and that they have cleared you

Xx

Last year I was diagnosed with primary peritoneal cancer and had a debulking op in November I spent five days in hospital and have recovered really well I had my 5th chemo on Christmas Eve and my last chemo on 14th Jan 2019 . It was hard loosing my hair again for the second time but a small price to pay. I did have days when I found it hard to get motivated but I just listened to my body. I am now back to playing golf and doing everything I did before I wish you luck. I was lucky that my family are all grown up and very supportive So I just had myself to concentrate on

Hi sheils

Really pleased to hear that you have gained your life back 

The more information i have received about debulking surgery makes me feel more positive about having it. Its s terrifying thought not knowing if your going to wake up without your organs still attached !

I told my husband at least i will get a free tummy tuck and a stomach reduction!!

Wishing you all the very best and keep enjoying your golf.

Again thank you for giving me some positive news

X

Hi

Thank you so much. I have had some  positive replies after you changed my post ( i wasnt quite sure what i was doing as i am new to the site )

I have found the site really friendly and full of useful information

Kind regards

Bee

Hi sheila

Ive been writing in my diary since the beginning of diagnosis, and like you said i write my feelings, aches and pains down daily.

As my memory is dreadful at the moment all my appointment dates and meds are all written in therr otherwise i would go mad trying to find all the bits of the papers.

My diary is my lifesaver as i can put down in words what i am feeling without unnecessarily upsetting my family 

Xx

Good morning Sheila

I have kept a diary from the beginning of my prognosis and it has been my little life saver

As my memory is so bad following the treatment i have kept a daily tab on how im feeling, all my aches and pains ( looking back on this i cant believe how far i have come, apparently i was 2 weeks from dying before i sought help!)

I have appointment listed and all my meds written down so i dont have to worry about forgetting anything

I would certainly recommend to anyone going through this journey to kèep a diary. There are some things you think about that you dont want to share with your family for fear of upsetting them too much but you have to have somewhere as an outlet

Xx

Hi I have been told that i will need the debulking operation I’ve been told they will take as much as possible as they can during surgery. I’ve been told that they will know more after surgery but it’s all so much to take in though and after waiting on the results