Hi there. I've made the decision just last week to come off tamoxifen after surgery, rad treatment and 2 yrs of taking tamoxifen. My risk is 32% - to me that is low enough to get some quality of life back. I have seen a tiny improvement but it's still early days. Back to see consultant in 5 weeks. He's meant to be country's leading expert and when I told him of my symptoms (very similar to all) he said tamoxifen isn't cause. Yeah right. 

There's a new tool out now designed by an American doctor which when all medical info is inputted it tells you the risk over 5 years then 10 years. They've also discovered breast cancer is as unique as a person's DNA- that's simply put. You have to read whole article

scienceblog.cancerresearchuk.org/.../

I am happy with my decision but you have to decide what's best for you and your body/situation.

Hope it goes ok and wish you well.

Hi, I have just read your post and am wondering how you are doing since you stopped the tamoxifen- I too am considering it, my life just doesn't feel worthwhile- I know that lockdown may have contributed as I started the drug just as lockdown happened but I just have to try something - did you gradually come of it or did you just stop? How long till you felt any benefits? 
thanks :)

Hi Tammy. I'm sorry to hear you're feeling this way. Perhaps keep speaking with your medical team and they can help with the side effects? This lockdown has been very difficult on many people. Are you aware of Macmillan cancer buddy? Macmillan pair you up with someone who is suitable and has been thru cancer - they ring you once a week for 10 weeks and as you know it helps so much to talk to someone who has been through it. I signed up for this and have a buddy and it has helped so so much.

I unfortunately am back on tamoxifen as my cancer came back in dec 2020. I've been reassured by my consultant that it wasn't due to me stopping taking tamoxifen. Remember each cancer and each person is different. I was just unfortunate enough to have a second cancer. I'm recovering now and fighting to enjoy my life.

Have you watched America's Got Talent? There's a lady who auditioned called "Nightbirde". She is the most inspiring and admirable person I have ever seen. Please do watch it and her interview. Remarkable!

I will say one thing - please do not make any decisions about stopping it until you have a discussion with your medical team. That is very important and ask many questions so you have it clear in your head so you are aware. Everyone is different. I hope you can find some relief to all this you are going through. There is help out there - we just have to ask. Please let me know how you are getting on.xxxx

Hi Tammy. I'm sorry to hear you're feeling this way. Perhaps keep speaking with your medical team and they can help with the side effects? This lockdown has been very difficult on many people. Are you aware of Macmillan cancer buddy? Macmillan pair you up with someone who is suitable and has been thru cancer - they ring you once a week for 10 weeks and as you know it helps so much to talk to someone who has been through it. I signed up for this and have a buddy and it has helped so so much.

I unfortunately am back on tamoxifen as my cancer came back in dec 2020. I've been reassured by my consultant that it wasn't due to me stopping taking tamoxifen. Remember each cancer and each person is different. I was just unfortunate enough to have a second cancer. I'm recovering now and fighting to enjoy my life.

Have you watched America's Got Talent? There's a lady who auditioned called "Nightbirde". She is the most inspiring and admirable person I have ever seen. Please do watch it and her interview. Remarkable!

I will say one thing - please do not make any decisions about stopping it until you have a discussion with your medical team. That is very important and ask many questions so you have it clear in your head so you are aware. Everyone is different. I hope you can find some relief to all this you are going through. There is help out there - we just have to ask. Please let me know how you are getting on.xxxx