Mastectomy and the reconstruction i dont really want (expand

Hi

I am having a nightmare, i was diagnosed a month ago with a high grade of dcis and was told a mastectomy is my only option with reconstruction so i decided on the diep as my weight fluctuates a lot and im only 49 so want it to be natural and move with me over the years. Only thing is, this would have to be done at a hospital 40miles away which is not a problem so i waited for an appt for two weeks at this hospital to be told last friday that the diep isnt an option at the moment as my bmi is higher than the hospital's guidelines, the original hospital knew my bmi and could have warned me of this surely!

The surgeon told me that i could have the diep in the future when i have lost some weight but in the meantime i should opt for expander, he then asked me which hospital i wanted it done at, there or the original one i went to, so that being nearer i said there. Went back to tbe original hospital on tues to be told they werent happy doing thr expander as it should be done by the same team! Now waiting for another appt to go back again to the diep hospital.......

With all this i am now struggling with not having my original reconstruction and having something completely different and also been told that my new boob will be nowhere near the size of my good one as they cant go upto an E cup.  I am finding it hard to imagine what i am going to look like now and having to put something else in my bra to even me out until the diep which could be a year to 2 years!!

Sorry this is so long but i needed to get it all out and just wondered if there is anyone else out there who went through having something they didnt want and the best way to get my head around it?

Thanks sharon x

  • Hello Sharon, 

    I can imagine it is a frustrating time for you to be told you can't have your original reconstruction and that they can't actually do your size. 

    We have in-depth information on our site on breast reconstruction which you can find here.  

    If you type the keywords 'mastectomy reconstruction' or 'diep reconstruction' for example or any other keyword in our search forum function which is located in the blue banner at the top, you will be able to find several relevant threads on the subject. Feel free to respond the ones you feel are relevant to you. 

    I hope this helps and that you will get chatting soon to our members who have had a mastectomy and reconstruction before.  I will now let them come forward and share their experiences with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator