It’s been a while since I have posted, so thought I would have another go with a little update.
We continue to be passengers on a journey to which we never wanted to take. We have 2 years of treatment to endure, and then we can hear the sound of that bell, a new destination which we never planned or wanted to ever reach, but is now the only one that we focus on.
We are lucky to have a strong family surrounding us and the noise of’ life’ thankfully drowns out the worry and emotions to which if you allow can be painfully overwhelming. Our son continues to respond well to his treatment and from this time last year is leading a normal and active life. From the outside you would never know what he has, the treatment he takes and the braveness he carries every day, he does not talk about his diagnoses and is back doing that thing he does best, being a now 11 year old boy.
That of course is not to say he does not have his moments, the journey is a unpredictable one, and although today is a good one, tomorrow may not be, but were fast accustomed to riding out the storm and adapting to whatever it throws in our path.
His brother and sister have made us immensely proud, they support not only him, but us, perhaps without knowing it, they have the ability to pick us up when we can feel ourselves falling. Stability and normality, fortunately for us is now a more regular feature in our complex life, and we are grateful of that.
Throughout the stresses that 2018 threw at us, we learnt some magical news at the end of last year, my wife is expecting our 4th miracle. A distraction and very much wanted gift who is due to join us in June. Out of all the medication our son takes for his cancer, the privilege we had telling him that he would be a big brother was a prescription that could never have been prescribed or been more powerful.
I am conscious that we are extremely lucky, we have seen others in last year to which have not been. It takes us to emotional places we would never have known existed if our son had not been diagnosed with cancer, our hearts breaks for those we have met on our journey whom have not been as fortunate in their own.
They say events and experiences shape you. I know I will never be the same. People say they do not know how we cope, I think in comparison to those that have lost a child, the answer is ‘easily’, but with a degree of guilt that we have been so lucky! A predicament and feeling that few understand but many on this forum I am sure will.
