Mri results

Hi- find myself posting on here again (sorry) as I just feel like there will be people in this group with a similar experience to me so will know the feelings of emotion I have right now.

i am 32 and was recently diagnosed with ductal breast cancer - original scan when my biopsy was taking  showed a lump of around 42mm - I was sent for an mri llast Wednesday and got my results today - the lump is 56mm and 2 further lumps either side taking the total to around 9cm - my heart just sunk - they don’t know if the other 2 lumps will be cancerous but are not going to do a biopsy as my the outcome would make no difference to the surgery I receive as the original lump is large anyway.  Im in amazing hands as I live in Newcastle and the staff at my hospital are amazing but I just feel absolulty gutted that the Lump is so large - I am being booked in For a CT scan to check my chest and pelvis etc and I’m terrified of the results.

i need a full mastectomy on my right breast where they save the skin and insert an implant- has anyone had this before? I am also getting 6 months of chemotherapy followed by radiotherapy- and hormone therapy- and at some point in the future reconstruction- it just feels like it’s such a long road ahead and I’m only at the start of it - has anyone had a similar experience- I don’t realky know what I’m looking for or to hear but I think just needing reassurance right now - sorry for the long essay

thanks in advance 

Amanda

  • I think they will make sure both boobs match eventually. This is what I'm gonna ask the surgeon next month. They told me they might take tissue from my good boob and put in my bad boob to bring them to a similar size. Guess I wont know for sure til then.

    With hair loss it depends on the chemo, but I think any chemo for breast cancer (especially FEC-t chemo) you will lose it really quick. I had the option of a cold cap but my oncologist basically said there was no point...it would prolong each session and it probably wouldn't work so I didnt bother. My hair fell out rapidly a couple of weeks after my first chemo and by far was the hardest bit of treatment emotionally...but still not top bad. Jamie (my partner) and me ended up shaving our heads together when it first started falling out and managed to raise 900 for Macmillan for brave the shave. You'll be surprised how quick it grows back.... mine started growing back quite a bit before surgery. Now I have a really thick (unmanageable) head of hair. Dont panic too much about hair loss.....just keep thinking the medicine is saving your life ;-) xx

  • Thank you- you are very positive and it’s nice to know similar stories as helps keep me positive too so thank you for sharing - that’s great you used it to raise money for charity - well done ️ I’m so scared for chemo but you are right, it’s life saving and hair grows back - lives don’t.

    thanks again darl and well done for being so brave and positive through everything xx

  • Hiya

    sorry for taking so long to reply.. I went back to work to try  and distract myself and it’s made me so tired!! ( which is making me worry even more the cancer is spreading)!!

    I have dcis ( in the ducts) but also some of it that has become invasive :( which is the nasty bit that spreads.. I think you said yours was all in the ducts? Did you find a lump? If you did that’s amazing as from what they’ve said to me the bit I can feel is the invasive bit (which to me now feels bigger than when I first went to the gp)..

    Its all getting a bit on top of me to be honest. :( it seems like an unsafe amount of time has passed since I was diagnosed on the 20th March.  I have another apt for the results of the latest biopsy tomorrow so maybe that’s also why I am feeling crap!

    how are you doing now? Hopefully healing well and starting to get more feeling back under your arm :)

    xxx

  • Hey mine is invasive too - mine totalled 9cm so was really big so yeah I felt it but it wasn’t a lump it was more like a lumpy mass teally - I get my results on Thursday with stage etc following my mastectomy- it is a lot to take in hun but I had my first appointment and biopsy on 27th of feb and it’s flown by when I look back it’s al abit of a world wind - the first steps are jut a lot of testing and learning about your cancer but I think you have to put your trust in them and know that they have your best interest at heart and the dates they set they know will be ok 

    the letter I got today says “advanced breast cancer” which is really confusing as from all my scans mine hasn’t spread (I’m not sure about my lymph results yet) but I think if it’s over 5cm it’s classed as locally advanced.

    you will have good days ans bad days hun- yesterday I felt really low ans today I feel fine - but on your low days try and do something that you enjoy- reading, shopping? Watching a box set - whatever’s to keep you distractice and if you ever need to rant you are more than welcome to inbox me :)

    we are All In then same boat and sometimes just getting it off you’re chest is helpfull

    im back at the hospital tomorrow to get my breas drained as it’s swollen but I think that’s pretty normal - other than that I’m not in too much pain ️ Thank you

    try and keep your chin up xx

     

  • Hi,

    Hope your appointment goes well today. I remember having my football boob drained during an infection. 4 x 500ml syringes full of yellow fluid was taken out. Gulp! Thankfully it didnt refill, just made my skin underneath the boob very thin. 

    My cancer was also invasive (ductal)....may have already said that in previous posts and was referred to on letters as advanced as it was a Grade 3 tumor. Looks scary when you see it written down but is just a term they use for the size. I had oncologist yesterday who examined me (good boob and reconstructed one) and said everything seems fine. Phew. Have to go back in 3 months then after the baby is born as boobs can change so much in pregnancy. If everything is fine then I will go onto the triggered patients list which means I dont need regular check ups apart from the mammograms on the good boob....just if I get any sinister symptoms I will be fast tracked through the system. 

    It really is a scary time and I had many meltdowns throughout the process but you'll be suprised how quick treatment is done and dusted and hopefully you ladies like me can look back and say "well that was brutal, but i did it"!! :D xx

     

  • Horrible news for me today >:) my cancer has come back her2 positive.. which means chemo for sure. I feel like it’s one bit of bad news after another [@Dizzle82]‍ Were you her2 positive? Is the chemo awful? And the herceptin? Xx

     

    Mastectomy scheduled for May 7th I feel numb x

  • Hi......sorry to hear how you are feeling but dont take being her2+ as a terrible thing. It means they can use targeted therapies to keep it at bay once the chemo kills it off...targeted being the herceptin. Sometimes it's better to have a type which is hormone receptor positive than one of the most dangerous triple negative forms that are harder to treat. I was her2+ and googled too much....dont do that....will drive you mad. 

    Chemo isn't nice but its doable and in most cases does its job. I had a lot of infections after each bout but the times inbetweeners I pretty much led a normal life...even having a few pub crawls during the process. Sometimes I think its mind over matter and if you tell yourself you're gonna feel rubbish you more than likely will. Just keep positive. Easier said I know but it really does help. The herceptin I found fine. Only side effect being the worst itchy skin I've ever had but apparently that rare.

    You will be fine and smash through your treatment journey I'm sure. It will fly by. Just give yourself time to process the news then come out all guns blazing. You can do this :-) xx

  • They seem to be pressing on with surgery first which doesn’t seem to be the standard? In most of the stuff I’ve read about it’s chemo and some herceptin first... my head is spinning x

  • Mine was surgery first too Hun - I had no treatment at all before my surgery last Wednesday and I find out when my treatment etc starts on Thursday :)

    i think they do chemo first if the rumour is abit smaller etc and will benefit but I think if it’s bigger they are keen to get it out first 

    your head will be spinning - it’s normal as this is all new to us - but try and just take each day as it comes and don’t think too far ahead - get one thing out the way at a time and just try and focus on the here and now - I know it’s tough but we will come out the other side xx

  • Eee that’s a lot of fluid - I only got about 300ml out today and feel so much better for it - sore though but deff relieved to have it out.

    Im so pleased your oncologist says all seems good - means you can hopefully enjoy your pregnancy and when baby comes along and not have to worry about cancer 

    it’s such a lovely happy ending for you - so so happy for you xx