Mri results

Hi- find myself posting on here again (sorry) as I just feel like there will be people in this group with a similar experience to me so will know the feelings of emotion I have right now.

i am 32 and was recently diagnosed with ductal breast cancer - original scan when my biopsy was taking  showed a lump of around 42mm - I was sent for an mri llast Wednesday and got my results today - the lump is 56mm and 2 further lumps either side taking the total to around 9cm - my heart just sunk - they don’t know if the other 2 lumps will be cancerous but are not going to do a biopsy as my the outcome would make no difference to the surgery I receive as the original lump is large anyway.  Im in amazing hands as I live in Newcastle and the staff at my hospital are amazing but I just feel absolulty gutted that the Lump is so large - I am being booked in For a CT scan to check my chest and pelvis etc and I’m terrified of the results.

i need a full mastectomy on my right breast where they save the skin and insert an implant- has anyone had this before? I am also getting 6 months of chemotherapy followed by radiotherapy- and hormone therapy- and at some point in the future reconstruction- it just feels like it’s such a long road ahead and I’m only at the start of it - has anyone had a similar experience- I don’t realky know what I’m looking for or to hear but I think just needing reassurance right now - sorry for the long essay

thanks in advance 

Amanda

  • So glad you have 1st step under your belt now. Cross it off nd gear up for the next one lass.... you can do this. 

    Yes I am well thank you :-) it’s comping up to 2 yrs in August since I was diagnosed. The hosp team got me through this - they have you safely in their hands too now. 

    I am so glad you have connected with wor dizzel... any questions.... she’s more than likely been there done that and..... not just here to tell the tale but gabbing life with both hands running forward and not looking back. 

    So.,, look after yourself, deep breaths nd look this in the eye nd stare it down ️ X

  • Aww thank you - we are all Toughie’s ain’t we - can’t wait till I’m 2 years down the line and can hopefully look back and it’ll all be over - I hope so ️ 

    Yous are all so positive and inspirational - thank you xxx

  • How are you doing now you’ve had a few days to recover? Xx

  • Hi ya ...

    Well you amazing lass ... we'll all get that cancer on the ropes ... here's to knocking it out the ring ... you go girl ...  Chrissie

  • Hi- I had my drain out yesterday and feel soooo much better with it out I think that’s what causes the pain - I still have no feeling at all under my armpit but that should come back soon I think :)

    so relieved It’s all done and not half as bad as I thought it would be - you’ll be surprised how quick you recover

    xxx

  • Ahhh thank you - I’m over the moon it’s done - find out my results on the 25th to confirm my treatment plan so that’s the next step - feeling so much more positive now though xx

  • that’s really good to hear :) glad you are recovering well. How does the implant feel? I think that’s what they want to do for me.. she said it’s the only opportunity to Save skin! I’m not a candidate for reconstruction with my own tissue.. she said I didn’t have enough reserves! 

    Hopefully your results come back clear and you don’t have to have any further treatment! Xx

  • Glad you are feeling better. Dont worry, that feeling in your armpit does come back....mine hasn't fully yet but it's a massive improvement from October. Will you still need chemo if your margins are ok? I think they would still go ahead with radiotherapy just to kill anything precancerous.....my margins were good after surgery but they wanted to be on the safe side. Just keep an eye on any changes like swelling and the area feeling hot. If I left my infection for one more day it could have got in my blood and been life threatening! I left itnfat too long. I'm seeing the surgeon next month to discuss what they're going to do as a more permanent thing. They said about putting tissue in from another part and possibly reducing my good boob....I had implants before cancer so just a case of finding 2 implants that match and put in enough tissue to make them feel more natural. It's amazing what they can do. With clothes on youd never know I had surgery....obviously without clothes I have one nip lol but that's gonna be rectified at some point aswell. Hope you continue to make a good recovery xx

     

  • Yeah that’s the same for me - I can’t use skin from my stomach or back but my surgeon had a plastic surgeon who says he could use my thigh or bum at a later stage for a reconstruction if I want to.

    i thought I would really hate my implant but to me honest it’s not as bad as I thought it would be and once it settles down I think it will be ok- it’s really weird though as has no feeling at all so even if I touch it with my hand it feels like I’m touching someone else’s skin and weirdly it sometimes feels abit itchy but it’s a phantom itch which is really strange. They used pig skin (I can’t remebrr the word they used but it’s some kind of pig tissue) to hold my implant in place under my skin so that’s abit strange and looks abit lumpy for now but they’ve said that will settle down a lot. Depending on how my treatment plans out I might even keep it which I said I wouldn’t do so just shows how things change. 

    Is yours in your ducts? Your case sounds really similar to mine xx

  • Yeah I’m keeping an eye on it but it’s hard coz we don’t really know what’s normal do we it seems ok though.

    yeah I get my results on the 25th but they said due to the size they are 95% sure I will need chemo (still 5% that I won’t though and I’m holding onto that ) deffo need radiotherapy though so just waiting to hear results and go from there.

    so will you be keeping your implants regardless? I got one with the thought of replacing with my own tissue but I actually quite like it now but I just wonder if they would give me an implant in the other side to match in the long run or if they would just leave me with my one real one (coz that might look strange as I get older ) I just don’t know what options we have

    did you lose your hair with chemo? I know some people don’t and I’m not too fussed either way but I think that will still be a shock regardless of how prepared I feel xx