Mri results

Hi- find myself posting on here again (sorry) as I just feel like there will be people in this group with a similar experience to me so will know the feelings of emotion I have right now.

i am 32 and was recently diagnosed with ductal breast cancer - original scan when my biopsy was taking  showed a lump of around 42mm - I was sent for an mri llast Wednesday and got my results today - the lump is 56mm and 2 further lumps either side taking the total to around 9cm - my heart just sunk - they don’t know if the other 2 lumps will be cancerous but are not going to do a biopsy as my the outcome would make no difference to the surgery I receive as the original lump is large anyway.  Im in amazing hands as I live in Newcastle and the staff at my hospital are amazing but I just feel absolulty gutted that the Lump is so large - I am being booked in For a CT scan to check my chest and pelvis etc and I’m terrified of the results.

i need a full mastectomy on my right breast where they save the skin and insert an implant- has anyone had this before? I am also getting 6 months of chemotherapy followed by radiotherapy- and hormone therapy- and at some point in the future reconstruction- it just feels like it’s such a long road ahead and I’m only at the start of it - has anyone had a similar experience- I don’t realky know what I’m looking for or to hear but I think just needing reassurance right now - sorry for the long essay

thanks in advance 

Amanda

  • Ahhh thank you so much - really appreciate it - I can’t wait to just wake up after my op tomorrow , I know it’s really just the start and there’s plenty to come but it’s the big part at least

    thanks again xxxx

  • I hope it all went well for you yesterday and you are feeling relieved. Step one one the journey done!!!! I found out yesterday it’s bye bye booby for me too.. booked in for a mastectomy on the 7th May xx

  • It went really well thank you - I came home today :) still have my drain on but that’s normal :)

    are you having a mastectomy and reconstruction at same time or just mastectomy? I had an implant for now until after my chemo and radiotherapy then getting recon 

    try not to worry about mastectomy I had very little pain afterwards and it’s a lot better than you think it will be xx

  • Thank you so much [@Chriss]‍ - I’ve seen your name on here a few times now and you are alwAys so lovely to everyone and helpful - it’s really appreciated. I feel a lot better now I’ve had my opp - I had a bad week at the start where I was abit teary but have been weirdly calm since - I will deff look through that thread- thank you again xx

  • Aww Thankyou [@Sandra123]‍ what a lovely message - I had my surgery yesterday and I’m home today so all went well - we are so lucky with the surgeons and hospitals in Newcastle I think they’re great  

    Are you all better now? I do hope so 

    it does really help having great friends and family around and I’m incredibly lucky to have both thankfully

    thabk you again for your lovely message xx

  • Wow candice [@Dizzle82]‍ What a lovely ending to your story - congratulations on the pregnancy. I split up with my partner when I found out I needed chemo as I was positive it would leave me infertile and I know he really wants children (we hadn’t been together long enough for me to risk it I felt) so your story is so positive and brilliant

    im sorry you struggled with your treatment, I hear it can be really gruelling.

    your story sounds very similar to mine, except mine is her- and I needed my surgery (which I had yesterday) before I get my chemo and radiotherapy.

    i had a skin sparings mastectomy and temoarary implant h TIL after my treatment- is that the same as what you had? Does the implant settle after a while mines pretty tight right now

    congratulations again - and I hope your pregnancy is going well

    xxx

  • Hi Amanda,

    Thanks for your reply. The pregnancy was a huge shock but a really welcome one. Ive known for just over 2 months and still have a permanent smile on my face :) Sorry that things didnt work out with your partner. Just never give up hope!

    Yes I had a skin sparing mastectomy and a temporary implant. They are going to operate again next year with something more permanent and put some tissue from elsewhere in my body in there to give it more of a natural feel. At the moment it feels like a big of a plastic bad with skin on. I had mine done in October but in January had a really bad infection and my boobs swelled to a ridiculous size and almost burst through the skin so they were going to remove it....thankfully the infection cleared up and it wasnt necessary although the skin on the bottom part of my breast is very thin and delicate. The implant does soften quite a bit though....even with the radiotherapy I had which said may destroy it. Ive been pretty lucky.

    Hope your treatment is continuing to go well :)

    Candice xx

     

  • so pleased you are home and it all went well! Go you!!!! First massive step done!!

    They mentioned an immediate implant to me as my consultant did would be the only opportunity to save my skin for any future reconstruction. My head is spinning a bit with it all! Xx

  • Ahhh you’ve had such a hard time. My implant feels so so weird just feels like I have something stuck to me and has no feeling or anything - If you don’t mind could u keep me updated on your journey as I think your having similar to me and it’s nice to hear how others get on thank you again for your message it’s really reassuring to know we ain’t alone (although in a sense I wish we were so we weren’t all going through it) xx

  • Thank you - I’m pleased it’s done as the build up is the worst bit 

    ahh your head will be spinning hun it’s a lot to take in and it’s not something any of us expect or think about before it happens - my surgeon reccomended skin saving massectomy with temp implant as he said if they used my skin from my legs or bum first then it could get damaged through radiotherapy so would be a waste so he said to let the implant take the brunt then look at something more permanent in the future 

    some of the recons look really great so I think we just have to trust we are in good hands and take it a day at a time - keep me updated how I get on if you can xx