Hi Dragonfly,

I am sorry to hear that you are still waiting for surgery. Have you had any tests yet to see how well the tablets are working?

Kind regards,

Jolamine xx

No Jolamine, no they just look at it. I can’t see much difference but I look every day. It certainly isn’t growing. They reckon it is a very slow growing tumour as it hasn’t spread.

I see my oncologist about once a month and I had an mri 10 days ago.

Hi Dragonfly,

They are obviously monitoring you fairly closely. Did your MRI show any changes either way?

Kind regards,

Jolamine xx

Hi Jolamine

I have not been given the results of the mri but that is to keep an eye on a second tumour. I believe they are both slow growing.

Dragonfly

Hi Dragonfly,

I am glad to hear that both of these are slow growing. Keep taking the tablets and, I hope that you will soon see some improvement.

Kind regards,

Jolamine xx

Its been almost 3 weeks now...still no results. 

Hi Essmum,

If you have been 3 weeks in the past, you may find that you will wait 3 weeks or more this time. Do you think that it has anything to do with the rarity of your cancer?

When you reach the 3 week mark, why not phone your consultant's secretary and ask if the results are back yet. The delay in many cases seems to be in getting a radiologist to check them over.

I hope that you hear soon. you must be climbing the walls by now.

Kind regards,

Jolamine xx

Thank you Jolamine..this is the longest i have waited. 

I don't have the contact details for the consultants secretary as my old consultant retired and the one who took over isn't much good so I dont really bother with him.

I have a CNS so will email them next week and If no luck there will give PALS a call.

How are things with you? 

Xx