Hi Dunny1990,

Thank you for sharing this, it is so uplifting. Could I suggest that you add the word Melanoma to the title so that anyone starting their journey with this cancer can immediately see your post.

As a melanoma patient myself (Stage 3) it's always great to hear about complete responders to the treatments and I tell new patients on here how treatment has progressed recently so your dad's experience helps to show there is hope.

Good luck with your Blog and good luck to your dad, may the treatment continue to work it's magic.

Angie

I've been diagnosed nodular melanoma since 2019 have hade 4 operation over  3 years now spread to lung again and liver consultations prognosis isn't great offered clinical trials or 2 other immunotherapy treatments which is left to me to choose 

I really needed to hear this today. I was diagnosed with melanoma in 2024, after complaining to my GP of a lump on my right flank for many years and being told it was a fatty lump. I finally went private and was immediately referred to the Royal Marsden, by this time the fatty lump was 4cm. I was operated on lump removed  and confirmed that it was indeed melanoma, lymph nodes clear. I have been on nivolumab since June 2024. Today received the news that it's spread to my lung and a lump is also on my neck.

PET scan ordered again to see how far the disease have progressed since January. I meet with oncologist on Wednesday to discuss treatment, I feel completely back at the beginning of all this, so any hope and success stories mean so much. I wish everyone on this forum every piece of luck and hope in the world.

There's a clinical trial going on just now for new drug from America that's taking place in Britain 

Always have positive thoughts 

Thank you for your reply, I never expected any if im honest, I'm just lost for now, but I know I'll pick myself up and dust myself off as my old mum used to say. This clinical trial would you know where I find details or even where I start to look. And bless you for your thought for me.

I'm sorry your melanoma has spread & I hope that, either the two immunos or the trial are successful at keeping you stable. Have you taken a look at https://melanomafocus.org/melanoma-patient-treatment-guide/ where they have a Trial Finder page & a nurses helpline?

Angie (Stage 3 melanoma patient since 2009)

I'm also sorry that you have progression too. It's a shock & it takes a while for it to settle in. I hope that you learned more as to your treatment options last Wednesday. If trials are something you need to consider please look at https://melanomafocus.org/melanoma-patient-treatment-guide/ who have a Trial Finder & a nurses helpline that may be helpful. Let me know if I can help with any questions etc. Good luck,

Angie (Stage 3 melanoma patient since 2009)

Hi, thank you for keeping intouch, it does make such a difference. Unfortunately I now have to wait another week to discuss treatment as the spinal team had not yet reviewed the results to the biopsy in my neck. The anxiety went straight through the roof, just want a plan or just something. You are right though it is a period of acceptance and right whats next. Thank you for directing me to the trials and info pages. This will def give me something to discuss at the meeting, made me realise I know very little. I know it's melanoma but is it positive/negative it's never been discussed. 

I wish you every luck in your journey, I understand now what living with cancer and the journey everyone talks about means. When you are outside of this life you really have no clue.

The very kindest wishes to you.