TAMOXIFEN

Hi,  I was prescribed Tamoxifen as ajuvant therapy alongside radiotherapy after my lumpectomy for E+ and sentinel biopsies.  I've been reluctant to take this as the "possible" side effects have put me off.  Mainly DVT and possibility of uterine cancer. 

I'm riddled with pain and fatigue due to other health issues so that isn't an issue,  just the two I've mentioned, oh and mood swings. 

Grateful for any input on symptoms anyone has experienced to see if there is a pattern? 

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  • Hi

    ive been on tamoxifen for a couple of months. The first batch of pills had very little in the way of side effects, the second batch was a different brand and I got calf pain, so severe I couldn’t walk so was sent to hospital for possible DVT check, all tests came back clear and was told by consultant my chances of DVT from tamoxifen are remote as i’ve never suffered from blood clots in the past and neither has any of my family. I did look on other cancer forums to find a number of women complaining of leg pain as a result of taking tamoxifen,

    i am now on another batch of tamoxifen with yet another brand and this one is making me feel freezing cold all the time - I get a couple of hot flushes in the evening and to be honest I look forward to then as they heat me up :)

    i have raised the issue with my oncologist and it has been decided that I revert onto the first brand I was prescribed and will be given 6 months worth.

    with regards to uterine cancer, I took comfort in the studies out there that suggest 20mg of tamoxifen = “Premenopausal women treated with tamoxifen have no known increased risk of uterine cancer”. the fish is slightly higher for larger does and post menopausal women.

    so my chances of breast cancer recurrence is far greater than my chances of other cancers and that is why I will always take it.

    i guess one just has to weigh up the pros and cons with their oncologist and go from there.

    x

  • What was the brand that you felt best on?

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