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Got this sent to me and thought it was great,hope it helps even a wee bit,helped me :)

Hi Pauline just thought i would let you know,went for my 3 month review today and consultant very pleased,as was i to hear it lol,have to see him every six weeks but thats a good thing as if anything crops up they can help straight away,very happy so wee cream bun and cuppa to celebrate,still doing good with eating tho small portions so he has put me back on calshakes as doesnt want me to lose any more weight,dont mind that as dont want to lose any more myself,like where i am now,hope you had a good weekend and things ok with you,you have been a great help to me,I wondered did you have a pet scan and how long after radiation you had it,they said i would have one but nobody has mentioned it again,am away for my bun now lol,God bless,Roisin xx

Hi dolly27 

thankyou really good to hear from u and the pic with poem is lovely to

good u went for ur check and all is good and consultant is pleased bet u were really happy we need this as helps us move forward did u have he camera to look the one they put up nose and into throat to check 

that’s all I have had since last year after treatment 

they tried a m r I 

but lips and mouth were so dry I cud not lie in machine to do it so they said they wud speak to consultant to sort something but nothing been mentioned since although I did bring it up at an app but he didn’t say anything 

so still waiting to hear anything have a check up in February so we will see how it goes 

not a bad weekend to cold to do anything 

and u how was urs 

well a cuppa and a bun sounds good

hipe was nice and same here still can’t eat great but can’t afford to lose any weight and waiting for Dietition to order more ensure drinks I called them but nothing back yet and have ran out so I will phone tomorrow 

I have found these Greek style yogurts lemon think there muller and really easy to eat and fresh as there lemons I will keep trying them 

mucus was a bit awful today but then u get good days it so that’s ok 

just the dryness driving me mad ha 

well god bless u to keep in touch anything just message hugs pauline 

Hiya Pauline,yes i got the camera test,i have to see him every 6 weeks and get it done,its not nice but it is reassuring,my GP told me that anyone who has radiation in there throat will get a pet can after it but he didnt mention it so might make appointment o see my Gp again and see what she says,the dry mouth is awful,bane of my life lol,have bought everything going to try help it and find the biotene mouthwash and xylimelts really help me at night,dont like taking the xylimelts during the day as i ordered the mint ones and doesnt mix well with food,will try the natural ones nxt,there is a company on the net you can buy them ftom much cheaper than amazon called growing smiles,they are about £8,50 for 40 which isnt bad,i would pay anything to get rid of this,drives you nuts but when i said to consultant he just said its the price you have to pay for radiation,just feels unfair that after all the treatment you have to endure this but i live in hope it will ease off through time,other than that i am doing well,eating diff foods now but very small amounts so he told me to go back on the drinks,i get calshakes off my gp and they are quite nice,its totally frezzing here,had the wee dog out for walk earlier and meant to walk into town but tired so walked up to bed instead lol,hope your mucas clears up a bit,its prob this cold weather because i had some this morn ,first in ages,love hearing from you,keep in touch,God bless ,Roisin xx

Hi dolly27 

Nice  to hear from u yes thought be camera one and like u say not pleasant but reassuring and same meant to be every 4-6 weeks I go but have missed a few app so wen go February will have another and hopefully be good I think u right the weathers making it worse wearing a scarf but still think affects u 

and same  thought meant to have a scan of some sort but Not sure as I said cud not do m r I due to me panicking being so dried out 

so not sure wat happens next if anything u have to let me know 

glad u are managing some things small is better than nothing I think I’m same and soft only as still gag a bit on hard things cos of mucus or sometimes I think the dryness don’t help Moisten the food enough if I know wat I mean and the ximelts sound good might look into them As like u say anything as long as helps not had other stuff u mentioned but had something called caphosol seems ok for rinsing mouth out got that off oncology 

i still need to ask for more drinks off Dietition as ran out and very expensive in shops for things like that I have and do buy sometimes if run out and probably not same nutrition as there’s give and only thing keeping weight  stable at minute or it drops again 

well message again anytime like hearing from u to and  glad u feel same about chatting or me not sure we meant it message on here on board or private message

im sure someone let us know

we’ll take care god bless

hugs pauline  

Hi Pauline,was just thinking about you and wondered how you are keeping,well i hope,i still have the dry mouth though notjuast as severe as it was and the Xlymelts are a life saver at night,throat still very sote and still on the mst morphine and ibrufen but am eating a lot of things like sausages now though am very very slow at eating but am getting there xx

Hi dolly 

sorry just seen this and thankyou haven’t been on here for a while had a check last Thursday and he said all looks clear he cud not see anything it worry about 

and the side effects can take a year or more so reassuring it will be a year June since last treatment 

so fingers crossed still voice gets rough and still got they dry mouth and lips water on hand all the time 

The xymelts sound really good though I have some artificial mouth stuff given to try we will see if helps any I do get sore sometimes depending wat I eat then worry it’s come back but I use ibuprofen and seems to settle it noticed don’t need as much as used to and dissoluble paracetamol works to if get sore u to will be able to cut out he morphine  soon biggest problem is voice and fatigue terrible 

so glad to see u are now eating and don’t matter how slow although can be annoying if the food goes cold I’m also eating more but still soft  things and got protein drinks to to keep weight stable as otherwise it drops do u have the drinks to ?

somtimes annoying wen eating as makes me cough even a drink somtimes not sure if that is normal or a habit I have developed 

anyway dolly really lovely to hear from you keep me updated as I will u 

pauline xx

Oh Pauline that is great news,so happy for you it was clear,think this illness will prob always make us a bit wary when we get sore,its only human nature,still plagued with the dry mouth tho the xylimelts are brillant for night time,i put one on going to bed and if i wake up in middle of night pop another in,they really do help,jst ordered another 2 boxes from growing smiles,they are about £8.50 with free delivery if you spend over £10 so i always order 2 boxes,theres 40 in each box so last you ages,it was great about 2 weeks ago but then suddenly reappeared with a vengence so water ,chewing gum and biotine durig the day,yes am back on drinks,i thought with eating cereals and small meals i could do without but both dietician and consultant said no that i need at least 2,000 cals a day and wasnt eating enough food to get that on just that so i take a calshake every daywhich is 600 cals,dont mind it,tastes like a milkshake,hate the fortasips but dont need them now Thank god,i know the recovery seems to take forever and the side effects really get me down sometimes but then just have to shake myself and think this time next year hopefully be a lot better,have had a lot of phlegm this last few weeks as well so use the nebuliser about 3 times a dy but hoping its only the weather tho might mention it to gp when i see her next,Hope yor family all well and you are enjoying the grandkids,was at christening on Sunday and there were loads of kids at it,decided i coldnt cope with wee ones now lol,no patience at all,couldnt wait to get home to peace and quiet!My lymphadema is a lot easier for me to control now as i do exercises 3 times a day so its only really badly swollen in morning when i first waken,have tried about a hundred diff combinations to keep my head raised when sleeping includind a adjustable bed rest but back to 2 pillows,one hard one soft and a snuggle pillow that i can put my hand under instead of putting it under my face which is how i used to sleep but hurts my jaw now,have spent a fortune on diff pillows,would love a adjustable bed that lifts at the top but will never be able to afford that lol,funny i have never really had the fatigue and have always been out and about to shops and that tho cant carry much now or be in agony nxt day,lesson learned hard way lol,will leave you now as daughter off this week for midterm break and waiting on me making her brekkie tho more like brunch lol but she works hard so like to see her getting a lie on,hope to speak soon,God bless,take care Roisin xx