Hi

Thanks for responding. It's useful to hear from someone on same treatment. I only started tx 3 weeks ago, so its early days in regard tx and diagnosis. So, taking everything one day at a time.

Can I ask what stage your cancer is and where ? Are you on additional tx, radiotherapy etc. Sorry for all questions. If you don't answer, that's ok

Cheers

Are

c

hey, it's cool - ask what you want no problem. 

im stage 4 aswell. i had an operation to remove it from my lung in march 2018 - then some chemo and radiotherapy -hoping that it would eradicate it. Unfortunately by Jan this year it had spread to my liver and bones - which was a real shock and incredibly scary. Still is, to be honest. 

That's when i started on the meds - so far so good - got to keep hoping that the clever medical people keep making various breakthroughs I guess .. 

Hi, thanks for the reply. I wasn't offered chemo, as immediate diagnosis was Stage 4 and started on Alectinib instead. Your stage sounds stable. I'm defo with you in hoping for ongoing research. All the best and thanks for the positive vibes.

No problem - I wish you all the best and stay strong 

no doubt there will be some dark days but deal with them 

as best you can and keep on going .. good luck. 

I m on Alectinib 8 per day. My cancer started in the postrate the lungs (half removed lower left)

now I have around 5 brain lesions. Who knows what the future brings?

I know many people on Alectinib who are doing well.  Some have had CyberKnife to treat brain lesions. Like you I'm on targeted treatment (Brigatinib) for my lung cancer. I was diagnosed more than 6 1/2 years ago and feel well.  There are new drugs and more in the pipeline. 
I wish you all the very best.

Doreen