Hello daisybell22,

I can completely understand why you are feeling sad and angry at the same time and disappointed that the MRI report was not read properly. I just wanted you to know we are all here for you anytime you need to talk to others who find themselves in the same boat.

I am pleased to hear the hospice has been amazing. You are right to want to focus at the moment on enjoying Christmas with your family and I hope you will enjoy spending some quality time with your husband and kids. Unbelievable that by the time it was removed it weighed 900g that is indeed massive but I am so sorry to hear your spine was damaged in the process.

If you wanted to chat to others on this forum who have also been dealing with leiomyosarcoma, I have identified recently a couple of threads which may be of interest to you. For example [@ardleyhut]‍ whose mum was also diagnosed with leiomyosarcoma posted on this thread about it and I also found this thread discussing leiomyosarcoma which might be relevant to you.

You are indeed a very brave lady daisybell22 and I hope you will hear from others here who will have been in a similar situation.

Best wishes,

Lucie, Cancer Chat Moderator