Declined RT and Chemo for stage 4 brain cancer

I’m now concerned I’ve made the right choice ? My disease is neither operable nor curable therefore nothing will be curative

my elder son put it very succinctly re my decision. “ Mum you’re stronger of mind than of body so don’t waste 2 months of what’s left of your life to make yourself ill with side effects” The decision was harder because I’m relatively asymptomatic ....I do know there’s much worse to come but for now I’m enjoying life albeit exhaustedly ! 

Has anyone else made this enormous decision ? I’d love to hear from like minded cancer patients. What do we do now, we’re not cancer patients as such, not surgical (in my case), not Oncology I’m hoping not to be left in limbo land ! 

Am I a person with cancer yet not a cancer patient? 

Id be delighted to share experiences with someone 

TIA

susieQ

  • Hi love, I think your son is very sensible and knows his Mum well.  From the beginning of our diagnosis it was the same, chemo is crippling and radiotherapy leaves many other problems, so if it's just a few months of life go with your heart.  We know ourselves well and you know what's best for you.  Sending warm thoughts your way,  Carol 

  • Hi there ...

    Everyone has to do what their heart tells them ... I had a grade 3 breast cancer ... and a masectomy July last year... I have many bone problems ... and this for me, after much thought, refused radiotherapy... l am taking tamoxifen for the foreseeable future .. but I'm fine on them ... 

    I won't have any more tests .. as I won't have any more treatment then what I am now ... so my thoughts are .. live every day wer given, and find something every day to smile for ... take every day as a gift ... and just enjoy that time ... but this is just my view ... I know I've made the right decision for me ... 

    Whatever you decide .. run with it and don't look back ... I've done far more then i ever dreamed rinse my op ...  my family are right behind me ... l weighed up all the pros and cons .. and in the end did what I wanted ... I had control back ... 

    Sending you a big hug ... cancer sucks ... it may bend us... but we won't break ...  Chrissie