Hello Parmz; so sorry you are going through such a rough time.    Aas far as your family are concerned can you calmly tell them what you would like from them and what is just irritating/upsetting?  I have no personal experience of brain cancer but have noticed that you have already contacted others with glioblastoma which I hope helps you.  There have been a few posts about glioblastoma in recent weeks mainly from carers but you might like to speak with them also. It you click on "Search Forum" in the blue banner above your post you can enter the word glioblastoma in the box which opens up and then a list of posters will come up underneath.  I am sorry you are feeling so bad and would like to think you are in contact with others who understand.  In any event we would like you to come back here and tell us what you are going through.  What are your doctors saying about what can help you?  Annie

Thanks Annie

i think they are finally listening to me, the doctors are focusing on the chemo, and I.m researching private medical help I came across a company in the USA called foundation one or one foundation they seem quite promising let’s get Xmas out of the way and see what happens xxx

thanks again

xxx

Hi Parmz,

Sorry to read that your cancer has come back.

When I was first diagnosed I suffered a lot from helpful, well-meant but entirely useless and really annoying advice. I found the only thing that worked was to point out the obvious along the lines of "that's interesting, but whilst drinking green tea/eating turmeric or brown seaweed might have helped stopped me developing cancer (though I've not seen any peer-reviewed scientific research to support that theory) now that I actually have cancer you might as well say to someone who is pregnant that using contraception avoids unwanted pregnancy." 

It would be worth talking to your oncologist about the merits of FoundationOne - my understanding is that they use genomic sampling to identify the best course of treatment, rather than provide the treatment. Great if you're in the USA where the public are barraged with adverts to get them to influence their clinicians about which diagnostic services to use, but less useful here where the clinicians follow NICE and Royal College guidelines. They aren't without controversy and were sued last year for false advertising - though the clam was settled out of court. 

Best wishes and good luck!

Dave

Thanks Dave I currently live in Egham and I am being treated at a hospital in London it’s such a long way to go but they treated me the first time around. The doctors are like we don’t think you should fly and I.m like sorry I need to try everything I can. They won’t do surgery they are focusing on chemo I’m on procarbzine which is messing my liver up. The NHS is great but I.m not so sure plus they are so stretched 

time for a crowd funding page I think. Good job the British are generous

thanks again xx

No worries - I hope everything works out for you :-) 

Thanks Dave I didn’t know that about them