Hi Jeanette. I have T cell non hodgkin lymphoma. Diagnosed last November. I’ve had radiotherapy and few weeks ago finished 6 sessions of CHOP Chemo . Lost all my hair and knocked me for six. Never felt so ill or low in my life. Had Pet scan in Sept which was cancer free. Told I was now in remission Oct 1st. Over the moon. Wonderful. Then a new lump appeared on my breast. Was terrified it was back. Had biopsy which was cancer clear. It was benign thank God. Now just a few days ago I have another lump on my back. Seeing my consultant 27 th Nov and praying it’s another rogue lump and not the cancer. The worry and anxiety is one of the worst parts of all this. Your mind goes into overdrive I know. Try to do little things to take your mind off it or just phone someone and have a natter or if you are able take a little stroll . Sometimes four walls gets you down. Keep posting one here. It will help you feel less alone. Lots of hugs x

Thank you for replying it’s helped me nice to know we are all going through this journey together you don’t feel so on your own, I have my 6th chemo on the 28th so I’ll be thinking of you on your appointment on27th I hope it’s all good news I think reading about our type of cancer lumps and bumps are common so try not to worry to much easy for me to say but I’ll keep my fingers crossed for you. Let me know how you get on. It is a roller coaster with this ride we are on I’m struggling with it I must admit I found the lymphoma action . .Org website yesterday found a lot moe information on it very helpful. Well take care and thanks. Jean

Hi, I have NMZL and tomorrow is my last R-cvp, I can relate to your posts. I am now imagining I have lumps everywhere, I'm sure I had two on my neck last week. I'm so glad my chemo is coming to an end but it's now a new worry as to when it will come back. I suppose the next worry will be in a few months when I'm back for a ct scan. Do you ever stop worrying, maybe when my hair comes back I will feel normal again, I'm just having the wobbles at the moment. Are they giving you maintenance treatment with rituxamab? I've been told no maintenance with my type of lymphoma, it's almost as if you go on watch and wait. I hope I get over these negative feelings when I should be jumping for joy. I hope your appointment is good and we can all get back to some normality. Take care

Hi . It is worry worry and I can’t seem to turn it off. My lump had got bigger and is weeping a bit. I don’t know if I should let haematology know or wait until the 27 th Nov. My Dr there knows I’ve got this new lump and dident ask to see me any sooner so I’m taking that he’s not too alarmed about it. Praying it’s benign like the last one. No I’m not on any maintenance either. Which Lymphoma have you got. I have T cell NHL. My hair is growing back now and I am getting stronger a little more each day. Mind you I seem to have a couple of good days and then a low one. Two steps forward and one back. Do you think we will ever be as we were. I hope so. I so want to be me again. Lots of hugs to you both . Keep in touch xxx

Hi it's probably a long wait till the 27th, but was your lymphoma a low grade one? If so you will know they won't do urgent treatment with this. I have Nodal Marginal Zone B NHL, it's supposed to be a rare one. I had stage 3. It's not curabable but treatable, I was told it will possibly come back but don't know how long it will stay away. My consultant is very approachable and sees me every time I'm in the Unit. I have a sore eye and nurse noticed it today, she told me if it gets infected I have to phone them. I got into trouble for not calling them for what I thought was a bit trivial, but I guess they are a very caring nursing team, nothing is too much trouble for them.  Maybe you have an infection and that's why it is enlarged again and it's probably doing what it's supposed to do. I wondered about that today if our lymphnodes  will work again, I might ask doctor tomorrow. I'm so looking forward to my hair growing back. How long did it take to grow back in? We can only live in hope that we can get over this and move on to our next journey and live each day as it comes. My thoughts are with you, take care X 

Mine is an aggressive one and a rare one too. I was told initially it could be cured but I don’t know now with these extra lumps appearing. Over the moon one minute in remission and now worried out of my mind. I was stage one. Mine appears as a lump which goes to an open sore. This latest one is number six. My hair started to grow back pretty quickly but it’s come back grey and they say no colour until 6 months. Never mind it’s hair. Hope your eye feels easier soon. xx

Hi, I would phone the hospital in the morning and tell them how worried you are especially if you had an aggressive type of lymphoma, it could be nothing but it's making you anxious. This is my biggest fear, it coming back months later rather than years. I'm glad about your hair though, I didn't shave my hair so I have bits of hair which is pure white. I will be wearing my wig for a while, I thought one of those natural dyes would be ok. This is a terrible time for you and the waiting as we have all been there before is just the worst. Wish I had a magic wand and make us all well again X 

Hi golden.  Think if that’s weeping you should contact them, you don’t want to get a infection, give them a call that’s what they are there for they will advise you on what’s what and at least if nothing else put your mind at ease.take care jean xxxxx