peritoneal cancer

I have been diagnosed with peritoneal cancer and have found that there is very little help out there.  I have no community nurse no contact in fact with anyone apart from 3 monthly hospital visits.  I was going to a day hospice but after 6 months was told my time was up and would be asked to leave. I was diagnosed about 18 months ago.  I am interested to know what symptoms (ongoing) other sufferers experience as these things worry me quite a lot.  I have no expectation of cure so am supposed to be receiving palliative care.  

 

  • Welcome to Cancer Chat Elmo although I'm sorry that you have not had much support on your cancer journey.

    I've had a quick look through the forum and unfortunately there haven't been many posts about peritoneal cancer lately but if you give our cancer nurses a call next week they may be able to point you in the right direction for connecting with others with your diagnosis and let you know what support is out there for you. Their phone lines are open Monday - Friday between 9a.m - 5p.m on 0808 800 4040.

    We do have many members on the forum that are receiving palliative care however and I hope you hear from them soon.

    Kind regards, 

    Steph, Cancer Chat Moderator