Im starting RT in 2vweeks for T4N1M0 in right tonsil and area.

Id like advice on whether to go for peg or NG. Thanks sheila

Hi Shelia. My trust didn’t routinely fit pegs but I had to consent to a ng tube if needed.oh boy I did need it suddenly at the end of week 3 it became my lifesaver for the next z6 weeks. Pros and cons for each. 
the by tube is visable didn’t bitter me the peg is hidden under clothes. 
the ng tube take a few mins I’d discomfort it fitting but is easy to look after and take out I took min out with permission from nurses. 
the pegs need turning every day several times when first fitted but they are in  place prior to treatments starting. With ng tube yiure waiting for it   for ng tube fitting. 
Wha5 I would  recommend is a pump with both tyoe of tubes as it saves time bolds feedingb with s syringes isnt8me consuming. I fed during the day. 
goid luck with treatment it’s hard but worth it. My blog might help www.radioactiveraz.wordpress.com

best wishes Hazelmx

Thank you so much Hazel for taking the time to reply to me.

i start RT on 22/12/25 3 days as first then 2 days break for Christmas Day and Boxing Day then a 7 sayer. Unfortunately my husband has  been diagnosed with dementia with Lewy bodies this year. He can still take the dog for a walk, make a cuppa etc but not drive me or come ro appointments with me as he wouldn’t understand it all anyway. Mine is HPV virus too and it T4N1M0 but not had results of PET scan yet which I am hoping is clear, My CT of neck and chest was clear and the MRI only showed right tonsil and that node

my daughter has just had her first child prem at 36,5 weeks and my first granddaughter. They are both doing well but she is unable tondrive at the moment either.

my son will help out in between work but I am extremely lucky that I have a fantastic network of friends who are neighbours also who are volunteering to take me.. The hospital I have to go thro is over an hour away so it’s a bit of journey but that’s the least of my worries!

I think I am going to go for the NG version too as I spoke to a man has gone through similar to me although younger  and he went 5 weeks without using one but he said he should have had it sooner as he was on his knees. I will take your advice and have pump feed and presumably you can still take the meds through that too as well as fluid

i had read your blog from start to finish before messaging you and it helped me so much as I wanted to know as much as possible and seeing the pictures also helped me enormously. the good thing is I have been teaching 5 classes of yoga a week so I am fairly fit and I hope this will help too.

Any advice you have or you think I should know would be received with great thanks and thank you so much for taking the effort to reply to me

best wishes for a full healthy life 

sheila West Wales

Sorry if this is in the wrong place but I managed to start a new thread when I wanted to part of this thread.

Hello group.

Why didn't anyone tell me that there were 200+ pages on the thread? I started on page 1 an hour ago before I found the last page arrows! :-D

Anyway I'm the newest recruit here. T3 squamous carcinoma in my right vocal chord. I think that should be T3 squeakymouse etc because that’s how I sound. No treatment as yet but oncology on 15th December. Hopefully treatment will start mid January.

I've been doing a lot of reading about symptoms and things to deal with them on this thread and I suppose that's what I'm most interested in. When the treatment starts to kick in I, like everyone else, will want to know how to ease the situation. Either that or has anyone been successful hibernating? :-D

Anyway, sorry to be yet another voice but also thank goodness for all the other voices.

Miki

There’s lots of positive advice during and post treatment on here

you might want to read the blog http://www.radioactiveraz.wordpress.com/

good luck

Hi S3bey

I've started reading it already.

The blog and the first 30 odd pages of this thread are a real eye opener. I didn't know what to expect but I have a better idea now. I'm going to remain as cheerful as possible, there are benefits to being an idiot!

Thanks for the reply and I'm glad I found this forum. It's going to be invaluable.

Remember take it one day at a time slowly slowly and recovery isn’t a sprint it’s a marathon but you’ll get there. 
Hope blog helps. 
Hazel x

Thanks Hazel

Your blog and posts on this thread have been very useful already. I'm better prepared mentally than I was at 7:00am this morning. There's still lots of learning to do but I have a bit of time before treatment starts. You are an inspiration as well as everyone who helps here. I feel better for finding this forum with all the good advice.

I'm sure as time goes by I'll get through this and hopefully pass on a few bits that I've found useful.

Many thanks.

Miki

Hi Miki. Bless you. I’m not brave or a warrior I wanted to be the best I could after treatment. I’m pleased to say cancer didn’t change me I’m still me warts  n all. 
oniy thing that’s changed in a bit kinder and I don’t  mind helping others navigate the cancer pathway. 
  Hazel xx

That is being a warrior as I feel better understanding the journey and about feeding tubes from your advice and experience.

A friend if mine who has had cancer and come out the other end also used HHC gummies as she said there is strong evidence so suggest it helps regress cancer cells? 

• I might buy some see how I go