Hi,Hazel I've found a nice small fish fillet done in foil to keep it moist and some tinned mushy peas goes down easy.Tried Smash and liver with onion gravy the other day and I managed half the liver but I braised it too long leaving it dry,still it went down which felt like an achievement! Seems to take forever to finish a tiny portion.Going to try some prawn pasta later.

Im try to keep the calories on as much as possible so it doesnt effect the mask having to get re made/ineruption of treatment etc and have found various things to do that without solids so far.

have home made soup that i blizt and puree and also blend a chicken breast though it as well to try and get some protein and  goodness in as well.
I have been given ensure drinks to take twice a day and also take full fat yoghurt and pots of fresh custard/ creamed rice/milkshakes.
tatstebuds not great but I manage the above ok.

I have my final week of radioatherapy starting tomorrow and wonder what that advice is regarding diet etc after the treatment stops?

Im just trying to get through this week re calories etc but does it matter so much after treatment as long as body has daily intake of something as well as plenty fluids

regards
ian

Hi Ian 

you will be fine this week they use the mask won’t fit as an way of keeping you eating . My radiotherapy team said in last week I had lost 1 mum off my shoulder so I ssud what do U want me to do I could eat like a horse tonight no guarantee that it would go on my shoulder. ! They said fair comments we have to bully h to eat but they have ways of adjusting the masks if need be. 

I found the first few weeks after treatment was when my mouth was at its worst and didn’t get any solid food down at all . Although we look forward to treatment finishing its scsrybti loose the daily contact that we’ve had for weeks just keep going what you are doing experiment every day. Today plain mineral water has come back to me after 9 weeks if it bring like chalk! And only drinking soda water n occasionally peppermint tea. 

Good luck for next week remember make sure you have a decent supply of tablets as u found my drs pretty useless and left me 6 days without painkillers luckily I had a secret stash ! But they didn’t care I’ve unfortunately got a complaint in against the drs as they also ignored a request from hospital for  56 bottles of endure ie 2 a day fir s month changed it to 12 random ones doh!!!! Stress levels went through the roof.

sntest I’ve got good Macmillan nurse n dietician 

once sgsin good luck

hszel

Hi Johnny 

mushy pea s I reslky can’t eat finding fish seems to stick although trying salmon tonight. Today plain mineral water has become drinkable who knows whether tomorrow will be the same! 

Akthough pork pie at lunch time was delightful cheesecin tiastbgir breakfast as well   Darent hsve orawns had some while having chemotherapy n made me do I’ll darrntvtry them not having much luck with pasta finding it sticks n anything with tomatoes is a no no too acidic . Keep in touch with tips we will get there in the end just didn’t think recovery would last this  long. 

Are u working I retired at 53 luckily n hubby worked underground and finished at 58 so we have personal pensions n he has his pit pension so we get by. I drive fir first time yesterday since treatment started frktvdo goof

take care

jsxrl 

thanks Hazel,

tbh I was concerned as well re medication after treatment stops end this week but to be fait my GP really good.

I phoned hime Friday re this and he re assured me I wont be left without and not to worry about quantitles etc and would make sure ok. He admitted communication between hospital good be better and they are not really updated timeously all the time, but he took a note of all my meds so not a surprise when I put through as repeat prescrption.

I'll post end week how I get on but thank you for words of encouragement.

kind regards

Ian
 

Hi Hazel,still in employment but not worked since treatment started on 2 July.Will be working til 67 I'm afraid due to naff pensions.Also have expensive hobby so not working is not an option,besides I like my job and I'd get bored,I  need the routine.Dont expect to be back at work til after Xmas really.Company have been good to me though so not had the worries that some folks have.Tried gluten free brown bread yesterday with some soup and it went down well.

John.

Hi Johnny 

i will be 66 when u get them oittance if state pension so in meantime spending daughters inheritence !!!!LOL Onkyngot the one daughter and she will certainly spend anything we’ve left. 

I worked in travel for 35 years so travel was our big expensive now we have a long term rental on an apartment in Murcia 5 mins dorm sea and try n spend about 16 weeks a year there other than that live quite cheaply although after this experience it’s a case if unwant simething *** ut buy it it was certainly a wake up call.

your hobby motorbikes by any chance !!!

we cycle that’s been our main hobby niw just returne dfor 19 days At apartment but  oncologist gave me permission to go and I actually managed to bike 100 km it was so brilliantly just having the freedom .

strangely bread as long as toasted I can eat spread with lurpack but will look for gluten free n give it a try 

The salmon fillet was perfect 3 mins a side in frying pan then popped in hot  oven for 3 more and I ate it all how was pasta and prawns.

hope the weather isn’t getting u down I was just pleased treatment was  in the summer .

pleased your work has been understanding like yiu say nit all of them are 

keep in touch 

hazel

Hi John 

My hubby definitely found gluten free was the way to go to be able to manage bread, biscuits etc - bit of an acquired taste but he soon got used to it. 2 1/2 years later he can manage most things now even a crusty baguette! with loads of Evian water( his water of choice ) to help !! 

He worked from home all through his treatment- 5 cycles of chemo- 30 fractions if VMAT radiotherapy and a neck dissection as he has his own business that is computer based so he could  even work whilst hospitalised with sepsis and extreme vomiting - though I wouldn’t recommend it ! 

Keep up with the eating - trial and error we found as everthing tasted different from before.

good luck

Emma 

Hi,Hazel,yes I'm motorbike mad,have been since 17 and I'm 60 soon.Not been on the road bikes since about week 4 of radiotherapy and not been track riding at all this year with this thing.And yes I found toast and lurpak an easier option than dry bread,with copious amounts of tea!!!  Funilly enough I've not tried gluten bread toasted although I might soon as I miss beans on toast an awful lot. I do have about 8 different pensions but they won't pay anything like my current earnings so I'll stick at it so I can enjoy life to the full.Hope you get to enjoy lots more time out in Spain.We're Greece fanatics and usually go twice a year but only once this year thanks to this thing!!!

Hi,Emma,I got the gluten free bread tip off another thread on this site that I read through,in fact it might have been off one of your posts as you're username looks familiar.If it was then thanks.The baguette bit gives me hope because I miss my bread the most,a lovely bit of bloomer with bacon and egg on I would seriously kill for so maybe just maybe in the future.Yes some things do taste strange.