Brain tumour again after 6 years

Hi there 

so I was in remission since 2012 however earlier this year I started getting headaches again and  really bad de ja vu I knew something wasn’t right so I left a message with my doctors at the hospital I went in for a scan and a week later I still had no news so I was thinking no news is good news boy was I wrong when I saw my oncologist she looked really upset looked at me and said we have a problem. The scan showed a growth where my pervious cancer was. This time they moved quickly I had surgery end of Feb but I ended up getting a bad infection after a two month hospital stay I was allowed home

last week after finishing my chemo I went back for another scan and during the follow up they told me the remaining tumour is actually growing. I have another scan next week to make sure it’s not after effects for the chemo I really hope it is what they think a false positive 

I’m so scared this time around it has been really tough I do t want to die. I know grade 4 rumours are fast growing and can spread to other parts of the brain 

I try to stay positive but sometimes I can’t help but think what if I die what’s going to happen to my husband. I told him if I die find someone who will make you happy he told me to be quite and that I was going to be fine 

I just have a bad feeling about all this I’m thankful to god every morning I wake up does anyone else know of anyone who has had a grade 4 tumour and survived?

 

any help or suggestions on how I can cope will be most welcome I feel like I’m going crazy 

 

kind regards

parminder 

pervious

  • Hiya, 

    I'm afraid I don’t think I will have much advice to help but when life gives us hands like these it’s sometimes just a case of carrying on and try staying strong I guess. I am really sorry to hear your cancer has returned and I know it’s really hard, and it’s hard to stay positive but if you beat it once you can beat it again, I know repeating such a journey is awful in itself but life is worth it :)

    I really do hope your scan does come back as a false positive and if that’s a belief for doctors then there is a good chance of that I’m sure they wouldn’t say that if there wasn’t a high chance of that being the case. I know I say this to lots of people on here but happy distractions are a god send sometimes, they can bring you a sense of relief and happiness even if it is for a little while that can make all the difference. If you’re not already, try to do some things you love with people that make you smile. Even something simple as reading a good book or watching a film if that’s what you prefer, making more time for your hobbies, anything to take your mind off of it. I know we have to think about these things sometimes but too much is never good. 

    I really hope you are feeling alright as you can be in this situation. We are always here for you if you need anything at all so please don’t hesitate if your struggling at all. There are some amazing people on here, truly. 

    Bex x 

  • Hello,

    Just wanted to say hi and let you know I am praying for you. You will find the strength you need to get through regardless of the outcome of your recent tests. Please try to look outward as much as you can and live in the moment, appreciating the beauty of each new day. 

    Let us know how things are going.

    Laura x