Stoma Reversal

Good morning

I have had a storma for nearly 3 years now and i am due to have the reversal in December this year. I am worried about what happens when it is reversed with regards to going to the toilet and getting back to normal.

if anyone can shed any light on this

Parents
  • Hi Darren

    I had the reversal on the 9th of may with something extra (hot chemo). I had my stoma from november 2016 right up to the 9th of may 2018, how I hated it no words can describe it, in my case because of the hot chemo the operation lasted almost ten hours.

    Now that I have my *** back everything is fine it took a couple of weeks

    Did you do your retention exercise ? VERY Important !

  • Just the same really. I was diagnosed with bowel cancer in 2012 (after a postal poo test) and had an ileostomy. Fortunately I was able to have a reversal in July 2013. I’ve always had to keep loperamide close by and used it quite a lot in the first 2 years. Now after 6 years I only occasionally have loose BMs and these are effectively controlled with loperamide.  I eat and drink what I like really and use loperamide perhaps once every 3 months now. This is all vastly better for me than the bags etc. So not everyone has a horror story here.  All the best

  • Stoma Reversal

    In response to Merino

    Hi I'm new to this site. 

    I had an operation and ileostomy, August 2018 after being diagnosed with bowel cancer. Completed 3 months of chemo in January 2019 and was told I can have the ileostomy reversed later this year. I'm 65 and not retired, I was very active before the op (not back to normal as yet).  I'm looking for information from anyone who has had their ileostomy reversed.  Hear lots of horror stories. Don't know if I should go ahead, but being the person I am feel compelled to give it my best shot. Anyone got any positive stories?  

  • It's nice to hear a positive story. I'm due a reversal op in 2 months, my bowel surgery was November 2019. I only seem to read about problems people are having and it's beginning to worry me. Having said that, I don't like the bag and want it gone due to leaks and a hernia. Any more positive stories would be nice 

  • Best of luck with this. Since my last comment a year ago I can't remember now when I last used Loperamide.  The trouble is I think that not many people with positive stories look at the site; they're all getting on with their lives. so just be positive about it. The healing process takes a few weeks and needed lots of dressing changes initially, but once that was over it was good all the way. As I said before it takes a while for the guts to settle down but that was vastly better than the bags!


    So all the best to you. 

Reply
  • Best of luck with this. Since my last comment a year ago I can't remember now when I last used Loperamide.  The trouble is I think that not many people with positive stories look at the site; they're all getting on with their lives. so just be positive about it. The healing process takes a few weeks and needed lots of dressing changes initially, but once that was over it was good all the way. As I said before it takes a while for the guts to settle down but that was vastly better than the bags!


    So all the best to you. 

Children