Triple negative breast cancer grade 3

Hi everyone.

I have triple negative breast cancer grade 3 and start my chemo in 2 weeks. 3 sessions of FEC - T then 3 of docetaxel.  Have been looking at wigs but just doesn't feel right. I'm scared and don't wanna know to much about it if I honest just want to know that it's treatable and curable which docs have told me it is so that's good enough for me. Has anyway else had this diagnosis or treatment and what can i expect. The fear of infection while going thru treatment scares me also. How has everyone else been with that ?? 

Sending love n hugs to all fighting cancer 

  • Kem, 

    12 months on and your post is still making a positive difference. Thank you, thank you.

    We all have our own story but it's comforting to be reminded we are not alone.

    TT 

  • Hi

    My diagniosis came straight out of the blue 'I had a feeling something wasn't right' turned out to be TNBC grade 3. Had surgery chemo and radiotherapy.  I'm now 6 years down the line and enjoying life with both hands.Time living in fear is not living and time wasted. the NHS will do its best for you and there will always be the Breast care team that will give you the support you need.

    I hope all goes well for you and its important to remain positive even at the darkest times, (my brother died during my chemo treatment). You will get through the treatment and be able to look back and amaze yourself at your strength................

  • Thank you pinky and perky. 

    Its great to hear good news stories like you. Thank you. This time last year I had my lumpectomy grade 3 TNC and was going into chemo next month. One  year later and I am going to Dubia next week to see my nephews.  What a difference a year makes. Live life. hopefully I’ll be able to post in 6 years time also. 

  • so glad to read this after  just being diagnosed  

  • i have also just been diagnosed with this age 37 and wondered what yiur treatment plan was ? it's been a couple of months so i hope it went well. 

     

    thanks

  • Hi paulap 

    I was diagnosed with triple negative breast cancer on 28th jan. I'm 39 years old with 2 children. This thing certainly turns your whole life upside down. I have grade 2 12mm lump in my left breast. My surgeon has advised that he will do a lumpectomy and sentinel node removal. This is being done tomorrow after a long 3 week wait for this to take place.

    i had an isotope injection today that turns the nodes blue so they know where to remove. Then got to wait 3 weeks for those results. 
    hope your well

    loumw

  • Hi Paulap,

    I'm sorry to hear that, i was diagnosed in Sept, i'm 32 and have a 2 year old daughter. My treatment plan was 4 cycles of weekly paclitaxol and carboplatin every three weeks followed by three cycles of EC. I responded really well to the chemo (i was told triple negative is known to respond well to chemo) and my tumour went so i didn't need the 7th cycle of chemo. I had a lumpectomy two weeks ago (to remove the clip that was put in to mark where the tumour was before chemo started and biopsy some tissue to check all cancer cells are gone (fingers crossed!) and then i'll have three weeks of radiotherapy in a few weeks time.

     

    I've had highs and lows but honestly hasn't been that awful, i've met some really inspiring people and done my best to stay positive throughout. Took the view that this is just another square to my life tapestry and what doesn't kill you makes you stronger. Recommend the headspace app and some reflexology to treat yourself. 
     

    You've got this!xxx

  • Hi Paulap

    yes it's been a few month . I was diagnosed last September with an aggressive stage 3 , 57mm invasive Ducatal carcinoma , triple negative ( the younger woman's rarer breast cancer ) as I'm sure you're already aware . I have spread to lymph nodes and internal mammary glands . I've been in chemotherapy for the last 5 months and have another 2 months of chemo to go . As my tumour was so big at 57mm we needed extensive chemo  pre op . I'm planned for a double mastectomy in April then query post op chemo and certainly radiotherapy. My treatment plan is a year in total but to be honest I can't believe Im nearly halfway there !  It turns your life upside down completely and all you can think is you don't want to leave your children without a Mammy  . My little girl is 6 . I think you have to hope for the best possible outcome and laugh when you can . My husband and I laughed and cried together the day I had my hair shaved . They don't tell you when it falls out it actually hurts , shaving it is a relief ! I honestly think the cancer doesn't like it when you're positive and laugh . Mine is shrinking nicely and oncologist feels I'm having a good response . I've managed With chemo fairly well apart from at Xmas I was admitted to hospital for 10 nights with neutropenic sepsis and pneumonia . That caused a few weeks of chemo being delayed which is frustrating but I'm caught up now ! I try to enjoy the good days and accept the rubbish days as they're enevitable . Sometimes you want to cry and eat crap so just go with the flow but I think having kids keeps you going as you really have yes choice . Use the people around you to help wheh needed .  I told myself at the start that I was going to beat this and I wasn't going anywhere without a bloody big fight . Im also a paediatric nurse and I run a large children's transplant unit so I've had the privelage of seeing little people come through cancer so if they can do it so can I !! That's what I tell myself on the tough days !  Ask lots of questions at appointments and write it all down as I guarantee you'll be bamboozled ! I wish you lots of luck on your journey and hope for a fab outcome for you and your loved ones xxxx

  • Hi all, I’ve not posted since Nov. 2018. I finished treatment May 19 for tnbc. Chemo, lumpectomy, nodes, n radiation! 

    I am so happy to say that I honestly can put most of this in my past. Living my full life with my three boys, and not looking back. My hair is just below my ears, and I can’t wait to put it all in a bobble. Loool. 

    I know it’s hard but it really can be ‘just a Phase’ for most of us. 

    Stay strong sisters and you’ll get through it. 

    Love to all of u . Xxx

     

  • Hi 

    I finished my treatment in May 2019 also. I am off to my bucket list holiday to South Africa next week.  Feeling good and looking forward to it although I am still wearing wig as my hair has come in really horrible.  I love my wigs so I don’t mind.  Be positive everyone and get plenty walking and exercise be it active in house a sport.  Golf helped me big time.  Praying for everyone with a difficult treatment.  I was lucky.