is there anyone else who has had nasopharyngeal carcinoma many years ago or any other head & neck cancer that is now cured but are deteriorating badly from latent effects of chemo and radiotherapy. I have been free of cancer for 19 years for which I am very grateful but gradual deterioration of tissues is occurring. I am deaf, cannot speak properly, have a tracheostomy and cannot eat or drink. I also have a weak neck causing forward head drop and lately a fistula has developed from behind my nose, passing through crumbling bones and out of the skin in two places just below my ear. I have been told nothing can be done about it so I will have this for the rest of my life. Anyone had a similar experience or can offer some advice?