Anal cancer treatment concerns

Hello,

I' stressing so much about planning and radiotherapy treatment. I had a meeting a few days ago with my oncologist and asked about how the radiotherapy would be administered. I was told that I would be on my back with my legs in stirrups, has anyone else been through this? Are you lying there like this half naked? Are you covered up? I can' get the thought of being in such an undignified position out of my head.

Sue

  • Hi there ... I'm a breast cancer lady ... so can't answer your question ... but l would have thought you would probably have a cover over you ... I'm sure they must be aware of patents worrying like you ... may be give McMillan a ring on Monday as they know far more then me ... 

    So hoping you get some reassuring answers ...and  welcome to our little chat room ... Chrissie x

  • Thank you Chrissie for your message. I know I'm being unreasonable but it's really bothering me. I do have a cancer nurse and she'd already told me I'd just be lay flat and covered. I think I'll have to give her a ring on Monday, it's bothering me so much I'm considering not having the treatment. Sue x
  • Hi there sue  ... you can always do one and see how it goes ... you could regret not trying it ... l know when l was having my son and was getting worried about my dignity... someone told me .. you can't not do this .. so leave your dignity at the front door of hospital and pick it up again on way out ...  funny enough, it made me chuckle and it did help ... so you can do this... you just don't know yet, just how brave you can be ...  love your photo by the way ... good luck ... let us know how you go ... Chrissie x

  • Hi Chrissie, I know what your saying is right. I'm usually quite a strong person and I know I'm blowing this up out of all proportion, I need to give myself a stern talking to. I'm sure once I'm there and I've met the people who are going to help me they will reassure me and I'll be ok. Just wish my thoughts and imagination would shut up! Thank you for your kind words they do help, I will let you know how I get on. I'm really hoping I'll have my planning appointment this coming week. Once that's over I think I will feel better. Sue x
  • Hi ... No I can quite understand, as l was pretty darn scared before my masectomy ....  Could l do this? What will l look like ... How much pain will l have ?   ... As the time drew close , l felt like running away ... Hoping I'd wake up, and it was all a dream ... Trust me , l bet none of us wasn't scared just before treatment .... Even the bravest have those feelings ... You wouldn't be human if you weren't scared a tad ... That's why we're all here, to hold each other's hand and know exactly those feelings ... Your deffenatly not alone ...

    But looking back after 7 months , you know l did it and now can try and help others as scared as l was .. so l will be there with you in thought, saying you can do this ... Like l thought "what's the alternative"  but in the end it's down to you ... But I'm sending you possitve vibes ...

    Let me know, whichever you decide ... Big hug xx

  • Hi Suzy 

    please don't worry they will put a tbig tissue over you and after the first session it really becomes the norm! They are so kind and they know that you will be feeling embarrassed etc ,please don't think of not having the treatment this is your life you are talking about and a little dignity loss is a small price to pay . Remember they are seeing patients all the time so they are used to seeing everything and I mean everything nothing will shock them. I cried the first time and they were so full of support . They don't normally use stirrups so I would check on that one as it's not likely who has told you that? Here for you if you need me I m just going into my 4 th week!  Stay strong and for goodness sake think positive this treatment will save your life xxx

  • Meant to say Suzy that you are going through the worst tome with waiting and planning etc once you start treatment you feel something is actually happening. When you are waiting your mind just goes over things all the time we ve all been through that stage and I m sure everyone will tell you the waiting and not knowing exactly what's going to happen is the worst part! Xxx

  • Hi Giiliebean, Thank you so much for trying to reassure me. The stirrups were mentioned at the meeting with the clinical oncologist, it wasn't actually her that said it it was a young Dr who was helping her by taking me through all the speil and giving me all the paperwork with info on. I wish now I had repeated the question when I saw her. Even my nurse was surprised by his answer , she know how I feel about flashing all my bits, it's not even that it's the thought of my legs being in stirrups and forced wide open... I didn't expect that at all. I won't refuse treatment but I will refuse being trussed up like that. It does help to talk to people who have been or are going thru it and everyone who I have spoken to have said the same as you. How are you coping with your treatment, are you very sore. You can tell me, you won't frighten me, I'm ok with everything else ( it's just the word stirrups) lol. Sue x

  • Hi Suzy , 

    I ve been talking to a lot of people having treatment and nobody is in stirrups, if it was a Junior dr then it's likely that he s got that wrong. I was told something completely wrong by my surgeon  which I worried about for weeks and he d got it wrong!  Please don't cause yourself unnecessary worry when it's worrying enough having cancer!  Get yourself some un scented moisturiser and slap it on before you start treatment leave it on all night and then reapply after your shower it will help but make sure you wash off before your radiotherapy each day. Bum cheeks ,groins , pelvis ,lady bits! and up the crack of your bum. Sorry there s no politer way to put it !  Moisturise your nails too. It takes time to line you up and they will be doing a lot of imaging throughout your treatment you ll know when they are imaging because it takes abit longer and remember to keep your body very still.  You put your feet in a mold and a mold goes under your knees too on the table not in the air! I will ask tomorrow if they ever have stirrups but I have not seen any!  I will let you know. I m quite nosey and look at all the different things as I m interested how things work. You may feel the table move slightly this happens after they have taken the image and just before the radiotherapy so don't panic just remember to stay in exactly the position they put you in and don't try and help them they will move you this way or that until you are lined up properly . Try to rest as much as you possibly can and when in doors definately no underwear really helps!  And don't forget to breath! Xxx

  • Hiya gillibean, lol you made me smile. I rang my nurse this morning with my concerns, bless her she rang the hospital for me to ask. The person she asked about using stirrups said " Good God no, who on earth told her that?" She said the use little foam cushions to position you, she said " we wouldn't be able to get stirrups on those beds" So I'm glad I asked now. It has made a huge difference to how I feel. So hopefully I will get my planning on Thursday, I had the camera down my throat last week because they saw a thickening in my stomach on the ct scan, but it was anything at all. And the hospital were just waiting for those results ( it's 2 different hospitals that do the scans and radiotherapy). So my nurse was contacting them to let them know my results were clear. Thank you so much for helping to put my mind at rest, I spent most of the weekend in tears. How is your treatment going? Sue xx