I have a very long medical history since November 2015 when I was diagnosed with breast cancer in my right breast. I had an mri in early 2016 which should suspicious areas in right breast per the biopsy that was done in November of 2015. There were some areas in left breast but they did not think any cancer. I had genetic testing due to strong family history. I came back with positive TP53. I had a right mastectomy with expander placement in March 2016 due to multiple areas in right breast and I was loosing nipple also. It could not be saved. I had 6 lymph nodes under right arm removed and no cancer showed in them I did not have any Chemo or radiation because of TP53. I went back to work in May of 2016. In late August I started experience what I did in right breast with it spontaneous leaking a dark blue fluid from my nipple and sometimes it was bloody. I was taking Tomixfen. I went back to see my Breast Surgeon and just requested to have a left mastectomy which the Tumor Board did not want me to do. They wanted to biopsy first which with my persistence my surgeon agreed to do the left mastectomy and I had left expander placed all of this done in October of 2016. The breast did come back also positive for dcis in nipple and very high up towards under arm. No lymph nodes were removed because surgery was considered prophylactic in the beginning. Saw oncologist and she didn’t feel anything needed to be done but to see gyn because I had a area on the outside of my uterus so gyn choose to due a total hysterectomy in Nov of 2016. I had only one ovary anyway. Right ovary was removed several years before. When I went back to see my oncologist after Hysterectomy she said I no longer needed to take the Tamoxifen. Also I didn’t say this but early on in my First Cancer diagnosis had to see a hematologist and go thru several testing because something was wrong with my blood which I had always my whole life had bleeding issues. Turns out I have a platelet granular defect. I have half the number of playlets someone should have. Every time I have anything invasive or surgery I have to get platelets. In January of 2017 my expanders were removed and both my implants were placed. I did fairly well till about February 2017 when I developed an pseudomonas infection in left breast. To make a long story short I had 4 more surgeries on left side and lost 2 implants from Feb thru April. I started with infectious disease doctor and had a picline placed in late April 2017 and had home I’ve for over a month. I at the present time have no implant or expander on left side. They have watched an area on my left side that has decreased in size. They call it a plegmon. A lot of times it is sore and causes me discomfort. My lymph nodes swell under that arm and on the left side of my groin. They have ultrasound the area on my left side at the breast center and said they feel it is stable. This is also the place that never saw any of my cancer. I have a very distinct odor daily that never goes away under my left arm and I have mentioned that before. No one seems to be concerned about this. I have also since all of this developed some Neurological problems and I am being treated for that. My concerns all along was that I still had cancer in the lymph nodes under my left arm but can’t seem to get anyone to listen to me or take my concerns to heart. I don’t know what too do. I do have medical insurance
