Can you actually survive stage 4 breast cancer nowadays?

Hello

Thanks in advance for any advice or answers. 

Am sorry to trouble you but am confused about what i have read and what i have been told.

I have been told by a medical team  that advanced breast cancer can be loooked at just like a chronic illness in some circumstances

And I have also read recently that advanced breast cancer has an excellent survival rate,.

But what is excellent in these circumstances? I want to be positive but also realistic. 

I read tales where people are happy that either themselves, their friends or relatives made it to 5 years, which indeed is lovely.

And I know this may sound odd or maybe ungrateful but  Is this considered excellent?

I always thought with chronic illnesses you just lived a normal life span but carried on with treatment.

Has anyone ever made it to 10, 20, 30,or even 40 years?

Parents
  • Hi,

    Survival rates for breast cancer are fairly high in comparison to some other types of cancer. My own cancer has pretty lousy survival rates. These stats off the CRUK website may help ... www.cancerresearchuk.org/.../common-cancers-compared

    Traditionally 5 years has been held up as statistically significant and as a result there's lots of stuff on the Internet about 5 year survival rates - the stats above cover 10 years too. 

    My oncologist told me that the longer people survive the more likely they are to survive a long time. This sounds illogical at first, but if you put all the patients on a graph, some die within 12 months of diagnosis, others within 5 years (if they survive the first year) but an awful lot who make it to five years are still around after ten years. I hope this makes sense.

    Best wishes

    Dave

  • HI Davek

    the link you’ve provided is very interesting but refers to Brest Cancer and you’re right survival rates for Breast Cancer are very good. My Mother In Law, for example lived for forty years after her diagnosis. (She sadly died within two months of her diagnosis with ovarian cancer).  

    Sadly, this post is about the very different animal; Secondary Breast Cancer. Average survival rates for this appear to be at 3.5 years according to one source I recently saw on the Internet. It appears to depend on what type of Breast Cancer the person has. It’s nearly always good to aim high and most of us, However we are effected by cancer are aiming for that. I hope you manage to be a record breaker for your own cancer and feel as well as you can. 

    Bryony

    Carer to partner with Secondary Breast Cancer  

  • Hi Dotty and Kellogg It's so nice to see a reply to my posting! It's a tough journey and every day is a learning curve. I try to focus on the positives and have this year started a vision board if goals I want to achieve this year and i tend in doing this for the next 30 years plus! There's another forum you guys might gjnd helpful It's called team inspire not on Facebook. The ladies on there are wonderful and many many positive stories and really good advice. Xx
  • Thanks Jazzy.

    I'm really glad to hear you've had the good news stories from the forum. Is it Inspire.com and then add your particular condition? 
     

    Your vision board sounds good, though, looking past tomorrow at the moment, scares me!

    xx
     

     

  • Yes www.inspire.com

    There is a breast cancer forum you can join

    But there is also an advanced breast care one too which us helpful for those that are stage 4

     

    Xx

  • Hi Kellog and Jazzy who I'm sure is following,

    An update on this afternoons trial by stereotactic radiosurgery

    Well that wasn't a nice experience but I got through it and survived. The radiographers were absolutely marvellous, patient and understanding. Oh that all the hospital staff were like that. The nurses in the chemo suite should go down and take lessons. To help with the side effects they give you massive doses of steroids on a sliding scale. Today I took two separate lots of 6mgs so 12 mgs. Then I went to the GP with a sore ear and she prescribed an antibiotic ear spray with added steroid. I also showed her a nasty inflamed area on my chest and she gave me steroid cream with added antibiotic.

    I should be bouncing off the ceiling by bedtime unfortunately there isn't an emoji for a Trampoline 

    Dotty (named in honour of my Mum)

  • Really glad to hear it went, I'd say well, but you know what I mean! Not good to hear the chemo nurses are not great. I've been lucky so far. 
     

    I get that energiser bunny feeling when I'm on the steroids. Try and get loads organised on those days! 
     

    Fingers crossed for some sleep tonight

    Xx
     

     

  • Hi Jazzy, 

    So far we appear to be a select band of 3. But it is good to get responses I agree. So frustrating to bare your soul and not get anything back. I shall investigate inspire. May I suggest a website too

    http://yestolife.org.uk
     

    A charity that has lots to offer by way of financial help, complementary therapies and psychological support. Like everywhere they are struggling a bit as a result of Covid shutdowns etc. but it's worth a look.

    Dotty xx

  • Thank you Dotty.

     

    Sending you all love x

  • Hi Jazzy2019, 

    We just noticed that the forum you've suggested is based in America and as such the treatment and advice given can be very different.

    If you and [@Kellogg]‍ are looking for a UK based community where you can connect with other ladies with stage 4 breast cancer it may be worth having a look at Breast Cancer Now. This charity has trusted information and an experienced team of moderators. They also have a helpline you can contact if you want/need to talk things through at any point.

    I hope this helps and I wish you both the very best on this journey.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Thank you.

     

    Yes it is America based but there are ladies on there from all over including the UK. There's a lady on there who goes by the name of best bird, and has issued a book pdf form free of charge with information and various advices.

     

     

  • Hi,

    My sister had a biopsy breast done. Phone call today to ask her to come in with someone. I am that someone and feeling devastated. 

    Your response and great spirit spoke to me here thats why i have reached out. 

     

     

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