I don' have dates yet. I rang my nurse on Monday she contacted the hospital and the delay was because they were waiting for the results of the endoscopy, which showed nothing amiss at all.
I think your great carrying on with work and driving yourself and everything. I think you always make good friends in situations like these when your all in the same boat.
Hi Mandy
Just wondering how you are getting on and how many sessions you are up to now?
I’ve had 17 now and am getting sore but still coping. So glad I bought a portable bidet- just in case, but it makes things so much easier
Take care, hope all is well xx
Hi
Everything going well, although a few minor hiccups. I have just been taken off my chemo tablets for one week because of my blood. Hopefully will resume next week. I have also had a very sore bottom. I Had one to start with but getting progressively worse but manageable. I am still managing to drive myself and working part time. I have a few helpers arranged to take me in the last couple of weeks. I have day 12 today...so ticking them off. How is everything going for you? Mandy x
Same as you really, as a say a sore bum but I have found a gel that helps, it’s called StrataXRT, it’s quite pricey but when I use it, it sort of leaves a protective film on my skin that helps me be more comfortable and certainly helps with going to the loo. I just keep ticking the days off. I have my 2nd chemo bottle on Monday until Friday and then the picc line can be removed. Finding time going quite quickly but can’t wait until it’s all over!! Very impressed you are still driving yourself and working, hats off to you. Best wishes xx
Hi
Did the radiographers say this gel was ok to us. I was worried about using anything that they hadn't ok'ed.. I work with my husband and we only work next door to the house so its easier for me to be honest. My husband has even set up a computer link to the house so I cant get out of it :) It does however keep my mind occupied and stops me from thinking about the whole thing too much. Good luck with your treatment. Regards Mandy x
yes they checked out the gel, the radiographers and my nurse and consultant. It helps me with the stinging around the bum. The skin really stings when it touches together but it gives me a little protection.
We all need to stay positive and remember we can do this xxxx
I had to ask for topical ointments. There is a prescription lotion that helps the skin heal. There is also a thick ointment that looks like vaseline (A & D ointment). You can't put the ointment on before treatment (I think it might cause the skin to burn more), but it really helped otherwise. It creates a barrier and makes it a lot less painful to go to the bathroom.
I'm sorry you have to delay the chemo, but they should be able to get you back to where you need to be real quick.
Hi Sheri
Thank you for your suggestions......I am sure its going to get quite unbearable as its progressively more painful each day - even with the salt water baths. I will ask about the others your suggest. They hope that the chemo can resume once I get another blood test on Monday...I do hope so! How are you now? xx
Thank you for your reply....I think its something that I am going to have to investigate....I am sitting lop sided at the moment due to the tenderness.... :( xx
i found the name of the stuff I was given it was polymemn non adhesive roll you just cut off what you needed dampened it with water and basically put it between your lady bits and bottom cheeks (sorry to be so basic!) it kept your skin from touching and had a soothing effect!
I’m sorry to hear you are all suffering it’s just not nice.
There is however light at the end of the tunnel - I saw the consultant today and got my MRI results - it’s gone and I am officially in remission! Have to get follow ups every three months for a year then if all good will go to 6 monthly check ups. I’m feeling so relieved and happy and can truly say when I was at the stages you are all at I never thought I’d get to this day.
Please all be kind to yourselves and know that you can and will get through the next few weeks months.
