Anal squamous cell cancer

Is there anyone on here who has had anal squamous cell cancer x

  • Hi Girls

    How is everyone getting on?

    I’ve completed my first week of treamtment, was very nauseous but have coped.  Sleeping has been been awful, well at night, I think that is the steroids! Taste and smell have been horrible and I’ve eaten because I’ve had to rather than want to. Everything white, white bread, white rice, porridge etc.

    take care xx

  • Hi Lynne, First of all well done for completing your first week. Keep ticking off those days. The horrible tastes will soon subside and your mouth will feel like your own again. Best wishes xxx
  • Hiya Lynne, at least your on your way now. I had the bad mouth thing too. No appetite, no taste, furry mouth and gums and ulcers, sexing time around it's not as bad. I've only got 3 radiotherapy sessions left now, but I'm not doing too well today. It's the pooing that causes most trouble. Can't wait to get it finished and maybe feel as tho I'm winning. I take medication for acid reflux and I've found the chemo makes that twice as bad, that's what caused the problems this morning. I still think of you all every day, hoping your all coping ok. Sue xx
  • Great news Lynne and Sue!

    Lynne, one week down! Well done! xx

    Sue, wow 3 days to go! Soon be over xx

    I’ve got chemo this week, then 4 days of Radio the week after.  I am feeling well in myself, my skin has not broken, wonder if it’s because I used the bidet early on, and cream up every time I use the loo (so approx 8 times a day) I have the softest skin ever haha

    It does hurt to go to the toilet properly, and this is quite a few times a day. And the itchiness is still a problem but I take 2 different  anti histamines a day, one in the morning and one later in the evening to help during the night.

    Thank you to everyone who replied the other day when I was down about money and my pay. I’ll get some further advice and keep you posted! Hubby said we’ll cope and that he doesn’t want me to worry or get stressed about it and that I’m not going back to work til I’m well enough!  Might be living on bread and water lol

    take care everyone xxx

    Lisa xx

  • Hi girls

    Although I’m not on here as much now I’ve been thinking about you all - how are you all doing?

    Thats me starting to get ready to go back to work- I have a seasonal job at Glasgow airport and had to leave early last year when I got diagnosed as it’s shift work and couldn’t really fit in with my treatments. 

    Usually start in April for the summer but they gave me a later start  date of June - a couple of months ago I couldn’t actually imagine going back but now I can’t wait to get my uniform and the red lippy back on!

    So there really is light at the end of the tunnel - hope everyone is going ok and taking care of yourselves.

    love Sands x

     

  • Hiya Sands, Lovely to hear your going back to work, I moan about my job but I do miss my work mates so much, it's the last day of my treatment tomorrow...soooo excited! Sue xx
  • Awh Sue that’s amazing 96% done!

    Just make sure you look after yourself over the next few weeks - I thought I’d be back to “normal” straight away but was so very tired so just take it easy.

    At the Beatson you rang a bell after your last treatment - hope they do that at your hospital it’s such a fabulous feeling.

    Good luck for tomorrow and let us know how you’re doing

    Sxx

  • Hiya sands, Thanks for your message, yes we have a bell and in the chemo dept. So I will ring it in the morning. I will look after myself, I've got all my cream and loads of morphine gel, and today I was given a fridge full of protein shakes too because my appetite is non existent at the moment, once the chemo gets out of my system it will come back. Can't believe I've nearly finished, looking back the time has flown. I will keep in touch. Sue xx
  • Hi Sue, I’m so happy for you that your treatment is nearly over, no more daily visits to hospital really makes a huge difference. Get yourself prepared with tissues for ringing the bells, I found it very emotional especially the radiotherapy one, it was so heart warming that everybody in earshot stops and claps to celebrate with you and wish you well. Well done for getting nearly at the end. Take care and best wishes xxxx
  • Weh-hey! Treatment finished, I managed not to cry when I rang the bell! Lol Just got to get rid of my sore bum now. Sue xx