six weeks after my treatment finished I had an examination and my consultant says the tumour was gone but that I would get an MRI after 3 Months which I had in Feb and got told on the 8th March that it was clear it was as only when I then asked about what to say for travel insurance purposes that the doctor says yes you can say you are in remission / I’ve to get three monthly check ups for a year then if all good it’ll go to 6 monthly and I think they said that would be for three years!
so I’m just trying to get back to “normal” and builf my fitness up as i still get really tired.
i hope you get on okay with your treatment and know there is light at the end if it all
what a rough time you have had you’ll be glad that the treatment is over although to be honest I found the few weeks after if finished really tough. But you get there.
i had the most amazing specialist nurse who gave me the “sex talk” and the wee bag of dilators I was mortified but we did have a good giggle when she said that if you are having sex twice a week you wouldn’t need to use them well the state my lady bits were in that wasn’t happening Lol!
however like you about two weeks post treatment I really felt I turned a corner and everything started to heal up and I had morphine gel and oral morphine which definitely helped I was told with everything you’re going through you needed to tell them if you were in Pain as that could be managed.
i hope you continue to feel better and get you’re strength built up.
glad you found us it’s an amazing wee support group!
my treatment was slightly different as I had one intravenous chemo on day one followed by twice daily chemo tablets along with the 28 radiotherapy treatments -and I was lucky as the chemo didn’t affect me too badly - by week three / four it was the tiredness for me and the skin breaking down but with good pain meds , lots of cream and I used swabs rather than look paper you can get through it. Be kind to yourself take all the help and support offered by friends and family and sleep as much as you can.
So agree about other people looking fabulous and I was walking in like John Wayne without his horse took me all my energy to wash my hair never mind any make up lol however thats me coming up 6 months post treatment and if you’d told me back then that I’d be back to going on holiday and living my life normally I wouldn’t have believed you.
i still sometimes get the desperate need to go but it’s got better I always just make sure I know where the loos are where ever I am.
take care and ask any questions one of us will hopefully be able to answer.
I was so pleased to see you back on here as I d been worried about you, yes my Goodness itchy bum drives me crackers! Sorry to hear your mum not been well. Hope you are feeling better now as the last thing you said were you were suffering with the burns after! Yes me too the worst time! But come through that now. Glad you re ok apart from the itchy bum of course love Gilliebean x
have sent you a friend request on here if you want to meet up I m in Pompey too can't do Wednesdays as I m normaly at hospital having picc flushed. Unless you happen to be up there on a wed! I ve got some bits you may find useful ie picc line waterproof cover for shower I only used it once I just used to hold my arm out the way you are welcome to it and a cushion with a ring in it! If you want them . Send me a pm and we can go from there if you want love Gilliebean x
Hi Janelucia, yes I've got a really itchy bum! I'm day 15 of radiotherapy, burns not too bad at moment, it's more painful to poo plus the itchy bum. At the moment I'm only using Diprobase cream, but I'm going to need something stronger soon I think.
Sue x
Hi JaneLucia the cream was called Aqueous Cream BP and also Intrasite gel think it was morphine based - I’m the same every little twinge and I’m worried hopefully in time this will pass xx
