Hi, I seem to be having treatment at roughly the same time as you. I am 12 sessions of radiotherapy down so far and had the picc line for chemo. Was very sick from the chemo but they gave me anti sickness tablets-stronger ones that sorted that out. I have been reading many forums in preparation but this is the first time I have actually commented as felt too nervous to!! Like everyone else I am dreading the burns and am very worried.
I went to have a standard heamerroidectamy and then they discovered cancer. Felt like my world just came crashing down. Trying to stay positive as most of tumour was removed but need to have full treatment Incase of any rogue cells remaining.
Welcome to the forum and our little discussion about our bum cancers.
Your sounds very similar to mine, I went to go with piles too was sent for surgery and then discovered anal squamous cell cancer. I haven' actually started my treatment yet, still waiting for planning appointment.
Are you getting on ok with the treatment? I'e found this site a godsend , the girls on here are very supportive and you can ask them anything.
It' a very emotional time and it' nice to talk to people going thru the same thing. I found it very hard at first to tell people exactly where my cancer was, but I don't care now and I think people need to be more aware of anal cancer because it could so easily be missed.
Please keep in touch and keep us updated on how your getting on.
Hi
I am into my second week of treatment 8th radio today. Feeling fine so far. No side effects and no burning but told this happens later on....the treatment for me has been chemo tablets and radiotherapy for 5 1/2 weeks excluding weekends. I didn’t have my cancer removed they hope to shrink it.....guessing if not gone they will remove but hope it will. It very much depends on how it reacts to the treatment....it has been a horrible worrying time, like everyone on this site with anal cancer it’s hard to get your head around. I found it helpful to discover it wasn’t just me,,there are others out there with the same cancer and it’s been good getting opinions and feedback. How is the treatment? I don’t seem to be effected by the sickness yet but it could come later...it would be good to keep,in touch and give each other support. I hope it all goes well for you. Best wishes. Mandy
as I mentioned there is a lot of forums etc out there but this one seems most current. When I have read others with older posts from a few years ago I got really scared with the posts about the burns and side effects, however we must all remember we are all different. When speaking to my nurse/oncologist the machines etc are so much more advanced than even 5 years ago so the older posts aren’t always as relevant- which gave me piece of mind.
i must admit I did shed a tear when the first chemo drug went in knowing there is no going back and it was now real and starting. However apart from the one night of being sick - before new meds I haven’t had a problem with the chemo and coped with the bottle well. I got the strange taste in my mouth but no ulcers etc.We only have it for 4 days so it does go quickly.
As for the radiotherapy I do get my appt sheet and scribble them out after each session. I’m going for number 13 today. I do have a little bit of a sore bum but nothing too bad. After having surgery in November my bum is used to discomfort. When I initially read forums about having piles removed I was very concerned but I seemed to cope better than others so trying to have positive mental attitude that I will get through this!!
its going well thank you! Day 8 today! Nothing much to report really. The radio is painless..just laying down and being zapped. It only takes a few minutes but I guess the more I have the signs of side effects may start to show. The 1hour prior to treatment and waiting to go in add to the visit which takes up a big chunk of the day. Have you any dates yet? I finish radio on 28th March and then see consultant 6 th May to see how it all went. Due to the size of my cancer I am concerned it will still be there at the end of my treatment and so not sure if surgery will be the next step...unless I am just being pessimistic. I have met some wonderful people just sat waiting for treatment and it makes you realise you aren’t the only one going through it and they are all as shocked as you are....nobody is except from this it’s really luck of the draw. Being positive and busy helps. I am still working half of the day....driving myself and going to rely on family towards the end should I require it. Let me know when you have news starting. Wishing you all the best..do keep in touch. Best wishes. Mandy x
My treatment is going well so far, only had sickness for one night and not really got any side effects of radiotherapy yet apart from my bum is a little sore but think it’s quite sensitive after op to remove piles. Not feeling particularly tired or nauseous either. As I understand it from asking in hospital things can start to get worse end of week 4 into week 5. Just trying to take it one day at a time. Hope things go as smoothly as possible for you.
Hi,
My treatment will be at Glan Clwyd, I live on Anglesey. My sister went to Clatterbrige many years ago with breast cancer...shes fine now.
I too will have chemo through a picc line, I'm ok with that..i think. I can't wait to get going now, I've been held up a bit cause Glan Clwyd were waiting for results from Bangor on something else.
Sounds as though your getting on ok so far, hope I will too.
Sue xx
The picc line is nothing to worry about, I have had no issues with it. Even when they put it in it doesn’t really hurt as you have injections to numb the site. You have to have it flushed once a week but they do that at hospital. I can sleep properly without it causing any issues.
i hope all goes well for you, the waiting does make everything much harder. Once everything starts time goes quickly and just keep ticking those days off!!
