Feeling lost

Hi. My Dad has recently gone into ‘palliative’ phase. He has never had any meds and is now at a stage where he has mets in the bones. He refuses all meds and wants no more surgery. Recently, he has stopped going to hospital appointments and won’t talk about it. I am worried sick because I don’t know how sick he is and can’t get access to any info as he is married to someone who isn’t my Mum. Has anyone else experienced this total locked out feeling? 

  • Hi there ... sorry to hear your dads news. You must be feeling really lost at the moment.... it sounds from what you say, your dad just wants his remaining time for himself and had enough of intervention. I think most of us go through feeling we’ve had enough of appointments, diagnosis, treatments etc coz this journey can be so overwhelming, where you feel you have no control over anything, some can get back on this rollercoaster and some just want a brake... 

    pits just a thought and maybe I’m wrong, but if you can accept how he feels and try not to keep finding out facts and time issues, just tell him you miss him and want to make the most of whatever time he has ... without questions , he may feel o.k about letting you back in ... the time you have now could be about hugs, chatting about other things, and walking this last part of his journey, holding his hand and most of all just accepting his path he has chosen ... thinking of you all ... sending loving thoughts to you .... take care of your heart too ... Chrisie ️ Xx

  • Thank you. Don’t get me wrong, my brother and I don’t put him under any pressure. It’s just that when we chat to him lies about appointments being postponed and then clams up. We don’t dare to ask anything! He has also moved quite a bit away recently - it’s impossible to visit during the working week. We see him every fortnight if we’re lucky. It’s just really hard because we don’t actually know how near or far he might be to the end stages of his life. I really appreciate your reply

  • Hi there ... from what I’ve found out the doctors are wary of giving time scales ... because so often some go on a lot longer and some sooner ... he may have been given a rough idea , but I’m only guessing... could you have a heart to heart with his wife .... I’m so sorry your in this situation as it must be really heartbreaking, and I wish I could help more ... but I hope you find a way through ...

    take care Chrisie xx