Hi I'm starting chemotherapy in a couple hours think it's called xelox for bowel cancer spread to liver was wondering what side effects anyone else has had on this did you lose your hair I've had different advice I realize every one is different
I just wanted to stop by and wish you good luck for today. Hopefully others who have had xelox will be along soon to share their experiences with you but in the meantime I've included some information we have on our website about the side effects that can occur whilst having xelox.
I hope this helps and that today goes well. Come back and let us know how you get on if you can, we'll be thinking of you.
Hi Steph . thanks for reply I'm home now first session all done was at hospital 6 hours very tiring nurses are lovely.made mistake of taking swig of drink from hubby's drink of orange didn't feel cold at all instantly made throat go funny and hands fingers tingling so learnt hard way but had been warned.has pretty much eased off now .came home with bag full meds think got head round it .glad be home in bed .lots more appointments .but it wasn't too bad .nurse said probably won't lose hair so that reassured me .think I'll stay around house tomorrow probably Sunday .will then hope go visit my dad he lives in care home near me .he's 93 haven't told him anything yet as don't want worry him unduly he doesn't have dementia but is fairly frail .and as I don't look in well .I've had flu jab and won't visit if coughs and colds in there .didn't discuss that much at hospital I know the immune system not as good .so I figured if I'm unlucky get cold feel it bit worse than normal xx
This is usually called capecitabine in the UK and the side effects vary enormously! I realise this won't help! I was on EOX (Epirubicin, Oxalyplatin and Xelox) for cancer of the oesophageal/gastric junction. I kept my hair but I had some short term nerve damage to my toes and fingers which made them feel cold all the time. The care team said this was probably down to the capecitabine, it wore off within weeks of coming off chemo.
Hi thanks for reply Dave .I realize throat was because I drank some thing cool . fingers are tingly on n off all evebining does wear off bit .yes bit annoying bu as you say all stops at end .and small price pay .just getting used to things and new routine never ever took this amount meds thanks again
I'm doing fine thanks, I'm due a six monthly CT scan next month so fingers crossed :-)
I had to make a schedule of all the different tablets (both the chemo and the ones to alleviate the side effects) to be taken at various times of the day and then check them off as I took each batch. Otherwise, especially in the 24 hours after my chemo infusions when I felt exhausted, I couldn't remember which I'd taken and when!
If you enter capecitabine into the "search forum" search box, you should find some useful threads about side effects and how to alleviate them.
Hi thanks good your doing well .well seem be coping bit better today and it's only first day .think got head round meds.getting used to tingling hands and wearing gloves open fridge or touching cold things .had cramp in leg last night but think was more because been sitting in chair hooked up all day .so hoping for better sleep tonight think I was too anxious last night so should be easier now
