Hi, I was diagnosed with E.T about 2 years ago. I'm 48, they found it through a blood test after I had very high bp, headaches and dizziness. My platelet count doesn't seem too high by all accounts at the moment so I'm just on a daily aspirin and bp meds. I'm also on a beta blocker which they said was for anxiety/palpitations, but can also be used to lower bp.

I was wondering a few things - firstly that some people have said palpitations go with ET? Why didn't they tell me that, instead of making me feel like I'm just a nervy patient? Naturally I'm anxious about the disease!?

Secondly, is this necessarily a progressive thing? Could my platelet count stay where it is, or even go down?

Since the diagnosis I have gone vegan, which suits me, and I now run the times a week. I just did my first 10k and raised over £300 last Sunday. The only thing I feel now is fatigue, but I'm not exactly young anymore anyway, so I don't know what normal fatigue is. I do hit a 'wall' from time to time and just have to sleep for half a day though.

Anyway, thanks for reading x