The good and the bad

Hi peeps

I have recently been diagnosed with breast cancer. Taking the excellent advice on this website I pretty much started by taking it one day at a time. This does indeed help. 

I thought to share the good and the bad and would love to hear anyone else's should they wish to share.

Today I had both a good and a bad moment. I received 2 letters in the post.

The first was from the hosp confirming my op date (my bad moment) cos my stomach dropped and I had that now familiar feeling of anxiousness take hold for a moment but shook it off cos I know it is needed. 

The good - my 2nd letter - as if... a tax rebate - boom  . Not half put a much needed smile on my face . Reckon a my treat family meal is in order.

Eeee it's the little things ain't it. 

Take care peeps 

Sandra x ️X

 

  • 1 down mrs fingers... go u. Keeping everything crossed u stay well throughout. X

     

     

  • Oooo spooky ghost walk. I was invited to a walk tonight but declined ( mine was walk the grandchildren around dressed up trick or treating lol.... not quite the same lol ;-) 

    enjoy!

  • Gadgetgal u started ur tamoxifen yet? X

  • No, my oncologist has said to wait until after the radiotherapy is finished. I guess if you start everything at once it is hard to know which side-effects (if any) are caused by which therapy.

    I've given the zometa a lot of thought and I'm inclined to take it as there definitely seems to be an anti-cancer effect, and I don't have to take the full course of 5 years if I don't like it. Still worried about the thought of it lodging in my bones and affecting how they work, but the stats for post-menopausal women do indicate a significant improvement.

    The bad or just the hugely irritating: I've just had a phone call from a nutritionalist who sounded like he was aged about 14. My oncologist has referred me to him to go over my diet to ensure that I'm getting sufficient minerals etc. OK, so my bone scan showed a bone density that was below standard, and I did mention that I have been a vegetarian for years.

    I have to admit, I felt a bit indignant because I spend a lot of time looking at nutrition and selecting foods to ensure that I have a healthy balance. Probably much more so that some of my meat-eating friends whose idea of a balanced meal is chicken, peas and sweetcorn and boiled potatos. However, I swallowed my pride and have arranged to meet with him after radiotherapy on Wednesday. If advice is available, I may as well take up the offer just in case. 

  • It always baffles me how all the hospitals work so differently. I was given Letrozole 10 days after my op at my post op pathology results appointment....a couple of wks before I even had my 1st oncology appt never mind radiotherapy. Had my bone scan and just got a letter saying next scan in 2 yrs time ( so assume my bones r ok). Was originally told would b on Letrozole for 5 yrs then told new guidance said I’d be on it 10yrs.

    I get what u mean about your diet sounds like u are fully clued up... like u say no harm in listening to what they have to say and make your own informed decision of how u want to go forward yourself. Definitely baffled at how all hospitals work so differently tho. X

     

  • Yes, that is a bit of a strange one. I did find a research paper that looked at the optimum time for starting post-surgery hormone therapy. I don't have it to hand just now, but from memory, better outcomes were associated with the sooner hormone therapy was started after surgery. I have the letter to give to my Dr to write the prescription. I wonder what difference a few weeks make...

     

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    Hi Warriorqueen,

    I hope that it all goes well today.

    Kind regards,

    Jolamine xx

  • Well my surgeon examined my boobs and they were ok but then he dug fingers into ribs in boob and found tender intercostals. 

    He is going to send me for pet scan for reassurance. May be 3 weeks before I get scan date!

    Thanks for all best wishes.

     

    WQ xx

  • Evening ladies. Hope you're all doing ok.

    WQ I had the same experience and felt reassured after PET scan - I was very anxious as I was convinced it was back due to it being 17 months post treatment. I am glad the dr is being thorough and sending you for a scan just to be sure. I really do hope the pain gets better.x

    Cancer is unique to you so everyone's treatment plan will differ slightly as there are so many factors the dr's have to consider. So it may well be that different hospitals are more thorough than others due to funding bit I'm certain the dr's are taking all necessary precautions. We all are individuals and it's better yo be treated as an individual rather than one for all.

    This club of ours is unique and I am totally convinced I shall never be as I was before. The day I am, I shall get drunk to celebrate!!

    Just on the last series of breaking bad - so so addictive! He's a tough guy - the one who has cancer.

    A good weepy film is what's helpful - a good release. I cannot watch any of the cancer research or Macmillan adverts on telly. I start crying! Then again, I used to cry watching xfactor!

    Enjoy rest of evening ladies and keep warm.x

     

  • Anyone had a Pet scan on bones before? Do they use that horrible radioactive dye into  your vein? 

    WQ xx