Hi I am 26 years old and recently lost my grandma and mum to cancer.. My grandma was 80 years old and had lung cancer the treatment she received from the hospital and support while at home was absolutely phenomenal and as a family couldn't have asked for better which is exactly how it should be, I work In private health care myself and I know how badly patients can be treated and I see how often human beings are let 'slip through the net' by all the hospitals that pretend not to be a business.. Then six months. after the loss of my grandma my mums mum, my mum was diagnosed with cancer in the whomb.. My heart was broken I couldn't lose my best friend although my grandma was well looked after I had no faith in the same thing happening with my mum and unfortunatly I was right. My mum was diagnosed in April 2016 a full hysterectomy was performed and we was told that after this operation the cancer would be removed and we would pretty much have nothing to worry about.. Days later the news you dread it had spread to my mums pelvic wall we was told it was aggressive at a stage 3b you can imagine the shock.. Mum was told from the 'top consultant' at the hospital she will have a life expectancy of 5 to 10 years although hearing this crushes you, you learn to come to terms with it so the 10 sessions of chemo began, after three sessions mum was sent for a scan which showed the Tumour shrinking thankgod some good news.. After the 6 session we was told the chemo is not working and it was stopped mum was put onto radiotherapy by September all treatments ended and we was waiting on results from October 2016 to 4th January 2017 my life was normal again my mums life was normal again her hair was growing back she looked absolutely amazing. 4th January mum was in a lot of pain we took her straight to the hospital and because the following day mum was getting her final results of the Tumour on her pelvic wall she was sent home.. The following day mum got her results and it was the news we wanted to hear.. The Tumour had shrank all the way down and could be controlled.. During that appointment mum explained the pain she had been in the day before and was still feeling the pain at the time without batting an eyelid she was told it's 'more than likely constipation and not to worry' two days later mum was still in agony we taken her back to the hospital where she was Xrayed the consultant said that the xray is showing a blockage which is causing the constipation and the pain discharged a few days later still no change in her health I rang the GP from our surgery for a home visit.. He had not seen my mum for months so I wanted to bring him up to date with what had been happening I explained everything to them get a response I never ever expected I was told 'well the cancer has spread don't you know?' I couldn't believe it how did a Dr that has not seen my mum in months know that but our family didn't my mum didn't? How had the hospital forgot to tell us than an tell us it's constipation? I was left to make numerous phone calls between two different hospitals nobody was interested I was told that the GP from our surgery had got it wrong and was 'pinning it on them' like I haven't got enough going in without having to do there jobs for them!! I finally spoke to someone that I thought spoke sense the top consultant his words was I only gave your mum her results a week ago it's the first I have heard of it spreading and because how small the Tumour has shrank to I am not worried that it would have spread further. After having to wait weeks on end my mum finally got in for a scan the results showed another Tumour had grown at the side of the previous one my mum was given those results over the phone.. This was over January and February no treatment was given to my mum until April she started with radiotherapy first cause it worked well last time. After the sessions of radiotherapy mum had to go for another scan.. The day mum went for results she was told we haven't got them yet we will rearrange when we do have them.. Two days later I was downstairs in the kitchen my mum upstairs in bed where she was 24/7 shouted me ..I came upstairs to find my poor mum sobbing her heart out what she told me next I was not prepared for 'the hospital have just rang me told me that the cancer has spread to my liver and lung and that they will send the scan summary for mum to make send her of it her self and they will see her in three weeks' This was in May and mum was just starting to go through her second lot of chemo from the Tumour they found in February. My mum and family left in absolute limbo not knowing what to do. The date for the appointment came through it was a day we was dreading fully expecting to be told my mum only had months to weeks left, mum not worried one bit positive as ever. Mum was not well and it took all her strength to make the appointment which was at 11.45am the clinic was the busiest I had ever seen it seriously ill people having to stand and wait in corridors cause there was no chairs mum finally got called into to see the Dr at 15.00pm If sitting waiting and watching people drop like flys wasn't bad enough the most shocking thing of all happened in that Drs room.. It was a understudy of mums consulatant that we had never met before he started to ask my mum how are you feeling after chemo.. I had had enough I interrupted immediately and I said we are not here about that we are here to speak about the fact the cancer has spread to her liver and lung and what are you going to do about it? The reply I got was unbelievable the dr asked me what was an I talking about it has not spread.. This is a day I'll never forget It was like I watched my mum die in that room infront of me and the dr there and then I told him about the phone call we had recieved he knew nothing about it and he felt so uncomfortable he kept gazing out the window every question I asked he came back with the same answer in a different way like a robot I had enough I knew nothing more about how ill my mum was after the appointment it was a waste of time.. I rang the hospice and asked for a second opinion and for her to be cared for by there Drs.. which happened because it wasn't the first time I had asked. This was the end of may we never heard from the hospital since and from that day every day got worse my mum passed away 08/07/2017 she was the most positive crazy happy person you could wish to meet happily married to my dad for 42 years they both acted like they was in there 20s nobody believed she was 60 she was a young cool mum.. The best is my mum worked at the hospital where she was so poorly treated!!! I am not a silly girl and I know cancer is unpredicatable but I am 200percent sure that if my mum had been treat like a human rather than a number she would be here today. We had no support from anywhere or anyone it's be diabolical luckily we have a great family to support each other.. This can't carry on people can't be treat this way I want to make a difference and change and prevent this happening to anyone else. I recently returned back to work to find lots of new clients on our books one I was warned about due to it being close to my heart a young male in his 40s terminal cancer lives with his wife.. I met them just last week a lovely lovely couple we was talking and comparing stories turns out the very same hospital had done the exact same to him they told him the cancer had spread but they had no idea where this vile disease had spread to.. Weeks later this is still the case! How can this be happening so often how many other family's have been through this? I have started a complaint expecting no response but an apology isn't good enough my mum along with millions of others have lost there life's due to poor duty of Care and I feel nothing is done.. I would really love to start some sort of charity to help family's that have been mistreated by the system that we are suppose to put our trust into.. I would be greatful if anyone had any ideas how I could do this?
sorry for the essay but I need my mums story to be out there so other people don't have to be put through this tragic treatment!!
Thankyou
