I was signed off from oncology on 24 November and apart from a self referral back to the bcu I’ve seen no one. I have no idea whether I need to see some one or not. Guess I’ll have to fall over or end up in a and e before anything happens. My next scheduled appointment is August. 

I know Riley roo, Norman has stage 4 lung cancer and we are not seeing anyone until June, we don't even know if he has another scan so we know if it's growing again.  It's a good job most of us are strong or there could be a lot more patients needing mental support.  Even our Mc Millan nurses disappeared! !

Hi Rileyroo. I agree about radiotherapy. I finished three weeks treatment on the 23rd March. This past week I ve not been at all well. So very tired and low and stomach troubles. I'm not seeing anyone until the 23 rd April. Worried and don't know if this is normal. Hugs xx

It’s not great is it? I’m not saying I want some one holding my hand cos I neither need nor want that but a phone call  or even a text may be once a month would be good. How are we supposed to know what is ‘normal’ after treatment? Yes, I’ve read the leaflets I’ve been given but they are very vague, have to cover all eventualities I suppose but what if mine isn’t covered?

Hi Gloden, I hit rock bottom about two weeks after I finished treatment. Absolutely shattered, felt sick a lot of the time even with the anti nausea meds I was given during treatment so I could tolerate it and complete the treatment schedule. 

Hi Rileyroo. Yes I feel sickly and just not well. Interesting that we both were shattered couple of weeks after radiotherapy. Think I've got bit of cystitis too. Fed up feeling ill all the time. Hope we both start to feel better soon. Thanks for natter. Think it's good to talk on here. Don't feel so alone . Lots hugs x

Well it seems all of you have suffered after effects from radiotherapy and no one has had any back up help.  I think this chat forum gives a more honest insight into how you do feel and not a vague list of what you might feel.  The aches and muscle pain hubby had was due to anemia, I don't remember this being mentioned , in fact our Oncologist shrugged her shoulders when this was mentioned by hubby.  The pain he was in was unbearable to watch.  Acid reflux, tiredness, lack of appetite it's a big shock to the already poorly body.  Stay strong all of you, you deserve better.   Hugs all round.  Carol 

It is normal after treatment to feel like this.  See your GP if it gets worse, have blood checks regularly and don't just put up with it, we found out this the hard way.xx

Never alone on here Gloden. 

I am really concerned about hubby's foot,  the toe is still painful and when I put a plaster on the heel last night he cried out in pain.  Is this the circulation problem or the after effects of treatment ? I want him to see the GP BUT I kow he won't in case it's bad news again, all  I can think of is will they have to amputate his remaining leg if it gets  worse. I go to bed tired out but sleep for the dead, no nasty dreams,  no chewing gums and gnashing teeth (back to brace) I seem to have more dreams than I used to, it's obviously things that are going on but some of them are so weird that I can't fathom them out!  Faye has come back off holiday but they have all had projectile vomiting so not a good end to it, she rang to say she had taken Ella to a birthday party and spent most of it with her head down the loo!  I've been for Sunday Papers and got the car washed and then we are off to Richmond to see Luke and then have lunch at the Stanwick Arms, it's sunny but still not warm however all the daffodils and crocuses are blossoming along the greenfield road and it's a delight to behold.   The birds are nesting and going mad in the garden,  the squirrel has eaten all the nuts so I'm off to feed them so they have the energy to build their nests.   See you tomorrow.