Stay Strong

I have a busy day and come home to my lovely neighbour mowing my back lawn.  I chastise him and say  I would have got round to it, he knew I was struggling and came in whilst I was out.  These kindnesses make my day.  I think hubby is not looking well and voice my concerns.   Nope he says he's fine but a little niggle tells me otherwise.   I get up this morning and he admits he's not good..  appointment at Doctors and he has another infection.  I am being picked up by a friend to go to Wynyard Hall and gardens, the day is glorious and she has the soft top down,we arrive and I look like Bridget Jones after her ride in an open top car!  We have home made cake and coffee and meander the beautiful gardens looking at the pumpkins, sweetcorn and variety of flowers.  I suddenly spot a flower that hubby and I keep seeing  on our drives and it's driving him insane not knowing its name.  A lady hears us talking, takes a photo, Googles it and walks back to tell me, it's  called the common tansy. People are so thoughtful and kind!  Back home hubby laughs at the state of my hair, saying I look like I have been pulled through a hedge backwards,  charming!!  I tell him the plants name, lovely he says and promptly falls asleep on his sheepskin in the sunny conservatory.   Hopefully the antibiotics will kick in soon, I want my normal hubby back.

  • Thank you for replying to my post.  You have made me realise that we must treasure the small things in life (such as Strictly and cake) in order to be able to cope with the big things.  Although my husband's prognosis is good it's hard to stay positive at times.  It will be a long road to recovery for him.

    The waiting is horrendous and I sincerely hope you receive the good news you are hoping for from the scan.  Meanwhile, back on the roller coaster that is our life at the moment!

    ps I think Faye Tozer might win!

  • It's funny but it's always the little things that tip me over the edge, like the sausages episode!   I'm pleased your diagnosis is good, the end result is your aim, don't look ahead, one day at a time and yes eat cake, drink wine and laugh.  I hope Cat wins!!  (Red drawf).  C

  • Since I told him to stop moaning the other night he's not said a word, however the grunts, groans constant rubbing of anything that is bothering him and the head and neck rolls are actually driving me bonkers, at least a moan is over and done with!  But in our  own inimitable way we are both stubborn at heart so neither will give in!  He's in the bath so I took pity and washed his back spooling hot water over his stiff neck,  plus we're going out for lunch and being moody in front of friends is bad manners.   Faye rang yesterday to speak to her Dad but he tried to hand her to me, she insisted he speak to her, he then handed me the phone and said I'm off to the golf club and went.  This upset me as I'd swept leaves up and numerous other daily tasks, asked if he wanted to feed the birds,  no he didn't feel up to it, but the golf club,  yes.  So I had a little wobble on the phone and she got upset because she's hundreds of miles away and can't be here for me.  A good natter later and we both felt better, the peace and quiet was bliss and when he arrived back the giant Yorkshire pudding with beef and gravy was eaten with relish.  We had both suffered from Fridays late tea of fish and chips.  This was because he said he would be home by six pm and turned up at seven thirty, to say I was cross is an understatement.   It's the only way he can control his life as everything else has been taken away by the cancer.   So its stopped raining,  the sun's out and we should have a good day now.  Thank goodness for friends, wine, food and cake.  See you tomorrow 

  • Husband came home from hospital yesterday evening (why does it take so long to get discharged!).  I think we both expected him to perk up and feel ok but he is very yellow, lethargic and full of wind from the stent insertion.  We only have a couple of weeks to get him gaining weight and as fit as possible for his big op but he doesn't feel like eating. I know he's only just come out but wondering if it was too soon?  

    I really don't know what to do - keep telling myself it's early days but hate seeing him like this.  

    Sorry, just sounding off.  I'll call Dr later if he doesn't improve.

    Thanks for listening.

  • Hi,  Hopefully in a day or two he will be feeling much better.  Even wind can be quite painful but will dissipate in the next few days.  With regard to eating, I'd suggest some resource drinks (they are a Nestle product), if your hubby remains uninterested in food.  My hubby is lucky to eat as much as my 8 month old grandson, but with 2 of these drinks a day, surprisingly is actually gaining a little weight.  Check with your Dr first.  In Australia you don't need a script and we buy them through our local hospital, and they are half the price we'd pay elsewhere.
    Just take it one day at a time, it doesn't seem so daunting then.  What date is your son's wedding? 
    As Carol says, eat cake, drink wine and laugh.  Sue

     

  • Thanks Sue.  The hospital sent us home with the drinks. He's had a couple of them, some soup, a banana and an ice lolly since I last posted so I think he's starting to feel a bit better.  Good to know they will help him to gain weight.  Your reply was very reassuring!

    Our son's wedding is on the 6th October, less than two weeks.  He and his fiancée have been together for 10 years and have our darling granddaughter who has just started school.  I can't wait to see them tie the knot!

    It helps tremendously to know you are all out there!  Where abouts in Australia are you?  We visited my uncle in Canberra a good few years back - an amazing country.

    Julie

  • Hi Julie,  This is a great forum and there almost always seems to be someone about that will reply to a post and offer help or a suggestion.  The wedding will be wonderful and I'm sure your hubby will have picked up by then and enjoy the day.  We are in South West Victoria about 150 km's from Melbourne, in dairy farm country.  I agree it is an amazing country.  I've travelled quite a bit within Australia, but never overseas.  We always hoped to travel to the UK, but that won't happen now.  A girlfriend travelled to the UK for 6 weeks, Just came back home a couple of weeks ago.  She loved it and her photos were wonderful, it felt like we travelled with her.  
    Wishing you all the best with your cancer journey.  Take care.  Sue

  • Hi Julie,  Sue is right, this forum is a great help.  We've both been through chemo, radiotherapy and many other traumas with our hubby's so ask and we will reply.   If you ever need help immediately ring your dedicated nurses.  Most problems can be sorted and stand up for yourself , if you're not happy about something ask questions.   Last year mine needed a blood transfusion and they tried to do a four hour transfusion and three hours of chemo in one day..  I put my foot down and said no.  Missing chemo by a few days doesn't matter, It works constantly so don't worry.  My blog goes way back to start of treatment so check it out if you aren't sure about things.  I hope the wedding goes brilliantly and if he drinks the shakes he will get his nutrition.   I ended up just giving him what he fancied as long as he ate.  It's like spoiling a child, go with the flow!  Take care. X

  • Hi Sue and Caz

    well what a night.  Hubby discharged on Saturday night - then had to ring for emergency ambulance at 10pm last night as he was very yellow and feeling so poorly.  A&E transferred him to Intensive Care as his heart was too fast and kidneys were packing in.  The stents are blocked resulting in his 'very very poorly status'.  Hoping to get that done today to improve his general condition. How things can go downhill so quickly.  Anyway home for a quick shower then back to the hospital.  Will keep you posted.  Hope you and yours are OK as they can be.

    Julie

  • We had a marvellous afternoon with Chris and John, good food, pudding and drink, not me this time as I drove  After the few miserable weeks we've had hubby needed to chill out and it worked.  He was amenable and chatty , ate all his food and looked content.  Today he's been to the surgery early doors, leaving me in bed for a change!  So his elbow has been syringed again and they held him down amd gave him a flu injection,  he wasn't going to have it this year as he was so unwell last year.  So two sore arms and I bet by Saturday when we're meant to be going out he'll be ill!  It's freezing today but the sun is shining so he's gone to get some fresh air,  kill or cure is the option!  I'm sorry some of my other bloggers are having a hard time, we've all been through these times, panic sets in and there  seems to be no light at the end of the tunnel, then amazingly  they rally and seem to forget the trauma they've put you through because they're the ones with cancer.   I remember early on in this blog, a gentleman contacted me to say he was reading my daily posts and it had given him an insight as to how his partner must be feeling, because as he pointed out it becomes all about them and a little bit of selfishness creeps in, so he was going to be more aware of how he behaved.   Keep in touch all my fellow carers and let me know how it goes.   Love Carol xx