My partner had radical nephrectomy on 26th May 17cm tumor in left kidney. We were told renell cell carcinoma however when they did the pathology they said it wasn't and it is Sarcomatoid chromophobe renal cell carcinoma. They said aggressive rare and prepare for devastation. He's only 41 with our young children. Worst nightmare the Dr said. He's started SUTENT in the hope to slow/ stop the growth. Not curable and no surgery. Currently in the lung and peritoneum. So so scary. Totally unknown on if the sutent will work. Side effects started n life's miserable. Please if you've had experience with this type of extremely rare cancer let us know. Thank you