Multiple myeloma incurable cancer

Yo yo I have multiple myeloma incurable cancer of the bone marrow / blood I have large tumor in my left leg top of thigh and hip joint as well as the cancer in my bones just diagnosed back in late January Started off in may 2016 playing tennis running for the ball I just drop straight down in pain left it thought I had just pull something put pain was getting worse could not raise my leg up had to use my hand for support took s good 8 months going back wards forwards to doctors were my tumor is a large poker dots of holes in my leg class as disable now have to be careful in case I fall over as my bone are weak and could break Have just done 4 cycles of Chemo high dose and will be having stem transplant average when cancer will come back is 4 years but they have found a defect in my genes which drops me down to 2 years when it will come or worse case it comes back after all this treatment end of this year I am o crutches to help support my legs Doctor s told me not got a leg to stand on. Bum bum or told me to hop it soz. But anyway keep fighting onwards and upward Its not easy and yes I do get down sometimes but it goes hand in hand the good the bad and the ugly yo yo yo I did do karate so am a 2nd Dan black belt this has help me with the bone pain to some degree been able to take a lot of pain because I have high tolerance to pain killers anyway again yo yo dave

  • Yo yo yo been a while hope you  well  update so got 25 months remmsion relapse March 2020 went on 2nd line treatment but only got minimal response before relapse 3rd time now now on lenalidomide but got sepsis April 2021 neutropenic sepsis  3 times spent 8 days each time  in hospital. I have lymphedema in my legs now .

    The tumor on my pancreas turn out to be pancreatic neuroendocrine tumor (pnet) slow growing cancer non functioning meaning doesn't produce any symptoms as such but can cause blackouts  jaundice etc so far is stable. now found out I have enlarge heart which can cause heart attack lol   that could be why get out of breath easily waiting on test results of echocardiogram on my heart they have said it's cardiomegaly heart condition 

    My levels are middling so might be going on 4th line treatment very near future  but other than that o wait  chest infection which needs  antibiotics everytime  I am ok  other than that  hope you well yo yo yo